Gaines' head ultrasound came back normal! Praise God! When we go back tonight we should get more detailed information. Also at our visit this afternoon, we found out that his blood gases are looking better. I know they want his carbon dioxide level to be around 40 and at lunch he was in the 60s...not perfect but better than in the 80s where it was. Please pray that this continues to get better.
His oxygen level was up a little when I got there but I believe they told me it had been down to 65. When he is quiet and still he can hold his sats with less oxygen but whenever he's messed with, he requires a little more help until he settles back down.
In other big news, they fed him today. I asked how he tolerated it an she told me it wasn't enough for him not tolerate it. 1 cc I believe. They are just trying to get his gut (their word not mine) ready...very slowly.
On of our favorite doctors is on tonight and she told me the plan was to try and wean his oxygen down to 60. Once they did that they would cut back on his nitric oxide and and settings on the oscillator. Please pray that he tolerates this. Again, I was reminded...Gaines his a very sick baby. I feel like I get that disclaimer anytime I sound a little bit excited or hopeful at his progress. I know they just want to keep us grounded so I understand. However, I AM going to be excited about this head ultrasound news! That is SUCH a relief.
PLUS, his bilirubin levels are down three points and tomorrow he goes from triple lights to double lights. Not sure the difference but it's better. Right now we can barely see his face because of the mask they have him wearing. Hopefully, once that come off we can post more pictures of his beautiful face.
One other bit of exciting news, our pastor from home is flying up Wednesday to spend some time with us. I know he is a busy man and we are humbled that he is taking time to make such a big trip for us. This is truly a blessing for both Beau and me. We cannot thank the people enough who made this happen.
I'm about to jump into a hot bath to try and relax my leg muscles. They feel like they've been run over by a log truck. Oh, I'm off the ledge now and haven't cried since lunch. We used a gift card that we'd been given for a good sit down lunch and I had a brownie sundae (I shared...some). I felt like I deserved it given my day.
Love to all,