So, Gaines is officially on CPAP...for now anyway. CPAP supplies continual air to keep his lungs open so they don't collapse but he's breathing on his own, where the ventilator was breathing for him...as I understand it anyway. We went for our afternoon visit and they had just put him on the CPAP. We realize that this might just be his first try. There's a good chance he may not take to it right away. It could take several tries.
For now he seems to be ok on it. He's on 50% oxygen and his sats are doing well. They had to bump up the oxygen level as this is a lesser machine but they will try to wean him as he tolerates it. Right before we left they checked his blood gases and they "weren't bad". I asked what that means and she said, not as bad as they were a few days ago. I'm taking that to mean that they want them to be better but they are not bad enough to put him back on the ventilator right away. Did I mention that he's also off the nitric oxide? Little guy has had a big day.
Oh, the heart echo is not scheduled for today. We think maybe tomorrow. They are on top of it but no one seems super concerned about it at this moment. I'm taking that as a good sign. We would however like to officially rule that little possibility out.
I also wanted to take a minute to mention some visitors we had late yesterday afternoon. Two of the leaders of my company were in DC for some meetings and came by to visit us. I cannot tell you how humbled we are that these very busy men took time out of their day to visit us. Unfortunately Gaines was having a procedure done and they couldn't go back to see him but we had a great visit with them. It was so good to see familiar and friendly faces. Before they left they each prayed for Gaines and our family. I am so blessed to work for a company that is run by such Godly people...I really mean that.
Beau and I have just been blown away the last few days at Gaines' progress. A few times we've wanted to ask, are you sure you've got the right baby? We are amazed at the way God is working in our lives. Please pray that Gaines tolerates the CPAP, for no heart problems and that God prepares us for the possibilities of each of these. Also, Reed is traveling today to stay with Beau's parents for a while. Pray for their safe travels and a smooth transition.
P.S. I got to take his tempeture today and yesterday we touched him a lot...I even got to touch his soft hair.
Love to all,