Gaines is having another good day. He weighed 3 lbs 11 ounces this morning. I think that sounds great but the doctors think it might be that he's just retaining fluid so they are going to give him a diuretic to see if it's actual weight gain or fluid. I hope that its actual weight gain. He's eating well so today they stopped the TPN (nutrients) he's getting. If he tolerates his feedings for the next few days they will take out his PIC line. This would be wonderful. It would be one less tube going into his little body.
He's also doing well on holding his tempeture. He's still getting a little help from the isolet but they are weaning it. Hopefully, he'll master that soon and the weight gain will keep going up and he'll get an open bed. It would be such a milestone for him.
They did decide today that he needed a blood transfusion because he's anemic (normal for a preemie). I'm not too worried about it. The nurse did tell me that sometimes the extra blood gives them the boost they need to bring their oxygen requirement down. Gaines is still hanging around 30%. I REALLY hope it helps Gaines. I so badly want him to get off the CPAP. It would just be so wonderful for him to not have that on his face anymore. It's always so hard to see his face because of it. Plus it would mean that my baby is breathing on his own.
Oh, one other thing...they have determined that Gaines has reflux. It doesn't sound like a big deal but it can cause preemies to drop their heart rate and sat level. Right now Gaines is on medicine for it. Please pray that it gets better.
All in all a pretty good day so far. Please pray that this continues and that this blood transfusion helps with the oxygen.
Our internet here is kind of touch and go at times so I'm behind on returning my emails...please bear with me if you've sent me one in the last few days and I haven't responded. I'm trying.
Love to all,
Brittany
7 comments:
Praying that it's real weight gain!!!
Ruthie
All good news! Praying that the diuretic shows that the baby is just plumping up!
We're praying! My preemie had reflux too, and it is the norm for almost all preterm infants. It will make things a bit harder at home with spitting up, and we had to stay on medication for it (due to pain) for a year (Prevacid). The meds helped him feel a lot better. Another thought I've had is childcare if/when you go back to work. The doctors will probably advise you not to put Gaines in any type of group setting for childcare for the first year due to the lower immune systems of preemies. Any cold he got could turn into RSV or pneumonia and require hospitalization, etc. You might want to look into lining up a babysitter who could come to your home if/when you return to work his first year. My preemie was also on a heart monitor to meansure heart rate and apnea for 4 months after we were discharged, and that would have been difficult to manage in a group daycare setting. I don't want this to be a stress to you, but I just thought you might want some things to try to plan for since I've been down this road too. Now, my child is 100% caught up with his peers and no developmental delays! I'm praying the same for little Gaines.
Jer. 29:11
So happy to hear the good report. Still praying for y'all!
THE LOCKLIER'S IN ANDALUSIA ARE KEEPING YOU IN THEIR THOUGHTS. HOPE ALL CONTINUES TO GO WELL.
Praying!!!
We are so happy to see that Gaines is doing well. We will continue to pray for all of you. John and Kelly Wells
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