Gaines is 10 days old today. I believe I can honestly say that they've been the longest 10 days of my life. I just keep trying to remember that each day is one day closer to us going home. I've been missing home a lot today. I just wish I had a definite date to look towards. It's a nasty rainy day here (again!) and Gaines seems to be having a down day so I'm having a hard time being positive. I will say that I am fighting it hard and so far I haven't let myself get too down...yet. Check back in 5 minutes...that could change.
Gaines doesn't seem to be in any mood to bring is CO2 (I'm tired of spelling out carbon dioxide) level down. It was actually at 92 (should be 45) at his last check. He's still on CPAP and the doctors' plan is to start suctioning him with hydro-cortizone. This is a steroid that should help with the secretions that he's got. As best I can tell, these secretions are basically mucus that he can't cough up himself. It would be like if you had a cold and mucus in your lungs...you'd have trouble breathing too. He needs to breathe well to be able to breathe out the CO2.
I believe everything else is still the same. I think I forgot to mention that he's on some medicine to help with his digestive system. It doesn't seem to be anything too out of the ordinary. He has gained one ounce so that's good news. He's now up to 3 lbs 3 oz. He'll have to be at least 4 pounds before he can be released...among various other things. He seems to be tolerating his feedings. He's up to 7 ccs every 3 hours.
His heart echo will probably be this afternoon sometime. Please pray that we'll be able to rule out any heart problems. I'm kind of concerned about this because after the last echo they were going to wait 5 days to repeat it. I feel like they are doing it earlier because the suspect a problem.
We've got a great nurse today and while she won't tell me that everything is going to be ok (still haven't found anyone to tell me that) she's pretty reassuring that all of this is typical for a baby of Gaines' circumstances. I tell you, a good nurse makes all the difference in the world.
Please continue to keep Gaines in your prayers. Pray for us to hit an up on the roller coaster again soon.
Love to all,