I'm almost afraid to put it in print, or whatever a blog is, but I think Gaines might be inching down on his oxygen. At tonight's visit he actually was at 25% when I left. By the time Beau got in there he was at 27% but they were feeding him. He needs more oxygen during his feeds because of the reflux. I really hope that tonight he's able to hang out around 25-26%.
His nurse tonight is one we haven't had before but I really liked her. She told me that she thinks his oxygen requirement has a lot to do with his reflux. She also mentioned that he's getting a bath tonight and that they generally require less oxygen after a bath because they are so relaxed. I've been more at peace about the oxygen the last day or two. I still really want it to decrease but I know deep down that it will eventually.
I was able to hold Gaines today at the afternoon visit. He wasn't swaddled up like normal and it was kind of like holding a wet cat at first. His little arms and legs were flailing about, he arched his back in a fit, he cried his little kitten cry and his fingernails were clawing at me...it was pretty funny. He quickly settled down and rested pretty well with me. I was able to hold him to my chest for the first time and I actually felt a little more comfortable holding him today. The first few times I was like a statue with him...I was so afraid to move. I didn't want to pull a cord out or make his monitors go off. Today I changed the way I was holding him a couple of times. Gently of course but it felt more natural today.
PS...in case Beau hasn't mentioned it, he held Gaines last week and probably will tomorrow. I just didn't want you all to think I was hogging him.
The doctors decided today that Gaines no longer needs his blood gases taken. They are discontinued unless he gives them a reason (like increased oxygen requirements, etc) to start back. Also, yesterday he had some pretty good sized residuals but today's were much better. The last one was only 1 cc. I'm guessing that yesterday's residuals played into the weight loss.
I think that's about all that I have to report for now. Please keep Gaines in your prayers...specifically his little lungs.
Oh...just a fun fact...I've been in DC for two months now. I left on March 18th.