I don't really have much to report this morning. Gaines seems to still be holding on with the CPAP. They are very slowly weaning his oxygen. I'm not sure what percentage oxygen he was at in our last report but he was at 38% this morning and holding his sats very well. I imagine they reduced it some right after we left. His blood gases looked better this morning. We've been specifically watching his carbon dioxide level. It was at 65 and at last check had come down to 58. They want it to be in or around the 40s so while not perfect, its definitely better.
He's had a few occurrences of bradycardia (slowed heart rate) and apnea (lapse in breathing) but he's come out of them on his own. According to our nurse, this is typical of someone with Gaines circumstances. I'd like them to stop all together but overall I feel good about where things are this morning. Please continue to keep praying for his lungs to mature and heal, and for no heart problems.
Something I forgot to mention...now that Gaines is no longer on the ventilator you can hear his tiny cries when he doesn't like something (like a diaper change). It is the SWEETEST little sound. I think it sounds like a tiny kitten. He still wiggles around a good bit but was sleeping peacefully this morning.
Beau and I are still doing well. We have been able to hold strong and can really feel God's comfort and peace. We just keep focusing on the day when we can be a family at home again. Reed comes again next weekend and I CANNOT wait.
I believe Reed is headed to the zoo today with his cousins. I'm sure he'll have a good time. I cannot tell you how much I miss that little boy. I think its even harder now that I'm out and physically able to care for him. Please pray for extra protection for Reed. I just pray that he stays safe and healthy and happy. I miss him terribly.
Please keep us in your prayers. We are so thankful that Gaines is tolerating the CPAP and we are in no rush but I'd love for him to come off the oxygen a little more today and for the blood gases to keep going in the right direction. Your prayers have been such a blessing to our family.
Love to all,