First of all, a big sigh of relief. The test results for the rare genetic disorder came back from John Hopkins and they were negative. I don't think the doctors, Brittany or I really believed Gaines had the genetic disorder but it is still nice to cross that one off the list.
Throughout last night Gaines' oxygen requirements were between 25% and 26%. Due to his recent progress, the doctors decided to try him on nasal cannula (2 liters) this morning. He has been on it for about an hour and is doing well. What an unbelievable blessing this might be. You may remember that the doctors tried him on nasal cannula last week and he only lasted about 5 minutes.
On a different note, we experienced a "God Thing" yesterday. One week ago Brittany and I were discussing our finances and determined our "budget" for the remaining time that she and Reed would be here. Yesterday, we recieved a monetary gift from an organization that I am affiliated with. The monetary gift was the exact amount of our "budget". What an incredible blessing.
Brittany will post later tonight with an update on Gaines and the nasal canula experiment.
Please continue to pray for us.
Beau
13 comments:
Wow, when God works, get out of the way. Thanks for taking a minute to remind us all, even in the middle of your storm, how awesomely BIG our God is. Prayers continuing....
My goodness, your post just gave me chill bumps. It just proves how mighty our lord is and how he continues to watch over us everyday. Gaines is always in my prayers as your family is as well.
It's wonderful to hear such good news...Yay!
Way to go Gaines!!! And what a blessing about the monetary gift. Wow. Can't wait to hear how the rest of the day goes. Continuing to keep you all in our prayers and please dont hesitate to call!
K, D & J
Great news! What a blessing!
God does take care of us in specific ways and it is awesome when this happens. Psalm 33:22 says, "May your unfailing love est upon us, O Lord, even as we put our hope in you." Thank you, Lord. Praying for continued progress and looking for a great report later today!
So glad to hear that the canula experiment is going well!
Praise God for blessings big and small. He always comes through. Praying for continued success on the nasal cannula.
Woo hoo! Even if he had to go back on the cpap, at least he's making progress with the n/c! Way to go Gaines!
God works in mysterious ways! and never lets us down!!!!
Praying for your family! Glad the test results came back with positive news. Hoping the nasal cannula continued to go well today!
Praising Jesus for all the good news!!!
Ruthie
AMAZING! I remember my son being put on the cannula and how happy I was that he was getting better.
Still praying for you all to get home together!
With love from VA!
Can you give a copy of the blog to your insurance company? Would that help them approve the transfer for Gaines? (Just a thought)
Steph
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