Wednesday, July 1, 2009

A Step Back

We've taken a little step back today. Gaines held strong on the cannula all night but he started having trouble with it about 11:00 this morning so they put him back on the CPAP. I'd be lying if I said I wasn't discouraged but at least I'm not devastated. I let myself do what I always try not to do...get my hopes up. I let my mind wander to the possibility of Gaines getting to go home (not just a hospital) with us. I was starting to think that it might really be possible for us to go home as a family. At least it was only a single tear today and not a major meltdown.

The good news is that after talking to the doctor today, I think we have a goal that we are working towards. All along we've been sort of heading in the same direction but today I feel like we are starting to make big efforts to get Gaines to a hospital back home around the time that I leave. Our doctor feels like its in Gaines' best interest to be in Alabama with us. Now we just have to convince the insurance company of this and get Gaines stable enough on cannula to get him home. Once we get there we'll really press our doctors there to continue with the CPAP philosophy.

Gaines' oxygen is back up to 30% but the doctor is not concerned. He thinks that he'll be back down around 25-26% by tomorrow. Something about collapsed alveoli that will take a while to reopen. Please continue to pray for his lungs to improve and wisdom and peace for Beau and me as we start making big decisions about getting our family home.

The doctor has encouraged me to keep in mind that Gaines has made so much progress in the last 10-14 days. Although today seems to be a setback he is still headed in the right direction...just a little slower than any of us would like.

I'm attaching a few pictures of Gaines taken yesterday while he was on nasal cannula.

Love to all,

Brittany

12 comments:

Sara said...

We're praying for you all and hope that it will work out for Gaines to be back in AL soon! Keepin' the faith,
Sara Blakeney

The mom of 4 monkeys! said...

Wow, he has really grown! If you have a moment maybe you could put a couple side-by-side pictures of when he was first born to now. Like you don't have anything better to do :)
Two steps forward one step back...

Brian said...

Brittany,

We're still thinking about you, Beau, Reed, and of course, Gaines. You are in our prayers.

Brian Hardin

LittleHoya said...

Still praying for you guys, of course. I wanted to pass along a link to 4th of July events all over the city. http://www.washingtonpost.com/wp-srv/special/gog/fourth-of-july-2009/index.html?wpisrc=newsletter&wpisrc=newsletter&wpisrc=newsletter

God Bless,
Maria

dylonhoustonlaetonreid said...

Brittany,
i've been away from the computer for a couple of days, I am so thankful to hear that he is just improving daily. I love the picture's too, Laeton Reid was sitting beside me and he said "that a cute baby". I hope ya'll have a blessed 4th!
Hugs,
Shelli

Giggles said...

Still praying that everything goes the way that you want it to. Your little one has come a long way and God has a plan and he will reveal it to you on his time. Our God is an awesome God! You and Beau are an inspiration to us all.

Cary said...

What a precious angel! Prayers that all will continue to improve and the Daniels family can come home to Alabanma!

natalie said...

This is a silly question: Does Gaines now luck like the Jolly Giant compared to some of the other babies? I know he's not huge, but he has grown so much since he was born! Even though we can't see much of him, he's precious!!!

D. Steindorff said...

Hang in there and trust in the skills and wisdom of the doctors and nurses taking such wonderful care of Gaines. You are one tough little family and I know that you will all be home together very soon. Try to enjoy July 4th in Washington and be sure to see the fireworks! You are all in our daily prayers! Love, Gil,Deb,Amy and Bert Steindorff

Linda said...

Praying for you and thinking of you every day!

Lori said...

Praying for the insurance to take on the bill to move Gaines home! It sure takes a long time to get an answer from them (insurance co.)

Heather said...

I found your blog and I think I can help you with how to get your insurance to give authorization to transfer to Alabama. I work in a NICU as an RN Case Manager and I help coordinate transfers/deal with insurance all the time. If you would like to email me, my address is HeatherAndersen333@gmail.com