We have had a great couple of days here in the Daniel household. We've been able to get unpacked and mostly organized, visit with lots of family, go to church, spend a good bit of time with Gaines and we were even able to fit in a swim with Reed. It is SO nice to be back.
This morning at church we sang the Doxology at the end of the service and I almost cried. For some reason I've always loved that song and singing it each is one of the things I love about our church. I'd been wanting to sing it for a while as our church in DC didn't really sing a good hymn like I like (I need a church with hymns and pews) but today the words also had a special meaning to me. God is the source of ALL our blessings and I have so many.
Praise God from whom all blessings flow
Praise Him all creatures here below
Praise Him above ye heavenly hosts
Praise Father, Son and Holy Ghost
Gaines is still doing well on the nasal cannula. He's still at 2 liters and about 40% oxygen. I wish I knew exactly how this compared to CPAP but I don't. I talked to the doctor about it yesterday and he seems to think that nasal cannula on 50-60% oxygen would still be a step in the right direction so I guess we are happy with where he's at. The doctor also told me that if he handled it for about 72 hours, you could pretty much assume he is "on" nasal cannula. This morning Gaines hit 72 hours. I'm so proud of him for maintaining this.
Honestly, I intended to really push the CPAP with the doctors here (I even brought some of the old doctor's research with me) but the doctor here seems to have just as good of a reason not to use it. It's so hard to know what to think...which option is the best? Right now we've decided to just go with these doctors and see if a new treatment shakes things up a bit. I'm hoping to start to see some oxygen weaning about Tuesday or Wednesday this week.
Gaines is still doing really well at taking his bottles. He took 35 ccs for me yesterday and did it again today...only 18 for Beau. The last few days they've been bumping his oxygen up during feedings but they didn't need to today. I guess he was showing out for all of his family that came to see him. My mom, grandmama, granddaddy, aunt, sister and three cousins came to see him today. I'm afraid the hospital is going to start charging us for the soap scrubbies that we've used. Seriously, we are so blessed to have the family that we have. They've been so supportive through this whole thing.
In other news, Reed is back in the crib tonight. He'd been in his big boy bed for a few nights but the last two have not gone so well so we are trying to get him back on a good routine before we try it again. Waking up the last two mornings at 5 and having the freedom to roam around pretty much sealed his fate for a few weeks.
I'm looking forward to getting back to work tomorrow and getting into some sort of routine. I think it will be good for all of us. Reed has not had the best time going back to school and Sunday school this morning was rough on him as well. I hate it because he used to be great about just walking in and telling us "Bye". Maybe some normalcy will do him some good.
Please continue to keep our little Gaines in your prayers. A huge prayer request was answered when we all made it to Montgomery safely but Gaines still has a ways to go. Please pray for his little lungs. Looking back it is amazing to me how far he has come. God is good.
Love to all,