I'm feeling better today but I didn't think I was totally well yet so I didn't go see Gaines today either. Beau got to go twice. I HATE not going but I know its the best thing for him. I would die if he got sick and it was because of me. I had a little fever this morning but nothing now so I should be good for tomorrow. I bet he's grown.
Gaines didn't have his best night last night (probably because he missed his mom). His oxygen was between 75-80% so his nurse checked his blood gases and they didn't come back great so they did a chest x-ray. The nurse practitioner didn't see anything on the x-ray to cause her to change things so they waited until the doctor saw him today. Keep in mind that (according to our doctor) 75-80% is not much more than 60% on cannula because he breathes in room air around his nasal prongs.
So...when the doctor saw him today she made some changes. Basically, she thinks that Gaines was just getting tired and she wants him to rest for the next 24-48 hours. Right now he's at 100% oxygen at 3 liters. Obviously, his sats are great. The new plan is to leave him at 100% and in a day or two, start to wean the flow. This makes sense to me because when we take him home on oxygen, he'll be at 100% just hopefully less flow. They aren't trying any bottle feedings for 24 hours because they really want him to rest.
Also, he's back on the lasix and on a higher dose. He had an eye exam today and passed with flying colors. I'm not exactly sure why he needed it since his last one at GW was great but whatever.
I'm coming to terms with the going home on oxygen deal. I think I was a little sad about it because through this whole deal I'd been focusing on the "prize"...getting to take a healthy Gaines home. I just feel like now I'm not getting the prize. I'll be taking a not totally healthy Gaines home. Beau says that's still the prize, we just have another step before we get there. I know that he's right and I'm warming up to the idea...I guess I'd better. I just hope that he's home by labor day.
I guess that's about it for now. Beau and Reed are watching cartoons on the couch before bed I think I'll join them.
Love to all,