Just a quick post to let you know that all is well. Gaines has had a pretty good day today. A little fussy at times but over all, pretty good. As I type this he is at 23.5%. I'm not sure that he'll stay there since he just had his Pulmicort treatment for the evening and he tends to do really well right after that. However, his nurse said that she had him there before the treatment so maybe he'll stay there. I pray that it sticks. That's huge. That's only 2% away from room air. Please pray with us that Gaines is able to keep bringing his oxygen requirements down.
I'm still waiting to hear when the MRI is scheduled for. There is some discussion about whether or not it can be done on CPAP. Our doctor seems to think that it can be and his trying to work it out with respiratory and radiation. We'll see what happens.
Also, Gaines will be trying to take a bottle every other feeding now. I got to feed him yesterday and he took 8-10 ccs by mouth. It was so neat to feed him. Something so normal. It reminded me so much of when Reed was that small (actually Reed was never this small but you get the point).
I need to run for now. We are headed home for the evening.
Love to all,