The past few days have been really good days for Gaines. He is currently on 5 liters of flow and has been weaned down to only 56% oxygen. When he first arrived in Montgomery, Gaines was on nasal cannula at 2 liters of flow and only 35% oxygen. Brittany and I believe he tolerated this because his lungs were still "open" from being on CPAP in DC. During the 3.5 weeks he has been in Montgomery, Gaines has slowly required more oxygen and more flow. However, the past few days Gaines has shown signs of progress on 5 liters of the high flow nasal cannula. It has taken 3.5 weeks but I think we have finally found a good "cocktail" of medicines to complement the high flow nasal cannula. The "medicine cocktail" is helping him reduce the fluid in his lungs but still allowing him to gain weight. Which by the way, he now weighs 7 pounds 12 ounces.
Below is a new video of Gaines that Brittany made yesterday.