Wednesday, August 5, 2009

More Progress

Today was another good day for Gaines. I love typing that! When I called this morning his nighttime nurse told me that he was down to 40%. I almost fell out of the bed. Right before bed they told me he was at 47% so I was shocked to hear 40. Beau actually thought I said 50 when I told him.

His doctor today told the nurse that he shouldn't be weaned anymore today so he's holding strong at 40%. I think he subscribes to my fear of going too fast. He doesn't think that they should wean Gaines more than 2-3% each day. I'm fine with that. Obviously I want this to go as fast as possible but I'm also afraid of too much too fast. Its such a weird feeling. Either way, I'm proud of my little Gaines.

So, not much has changed today in the world of Gaines.

I was happy with my talk with the doctor yesterday. I think Beau recapped the conversation so I won't bore you with it again but it made me feel a lot better. I just get fired up about things kind of easily sometimes. I really shouldn't but in my defense...I think its genetic.

Anyway, we are all still doing well here. Reed is getting better and better with his talking everyday. He and Beau practiced his first and last names today and he can now say "Reed Danny". Pretty close. Makes me laugh.

Please continue to keep our little Gaines in your prayers. Please pray for his lungs to continue to make steady progress.

Love to all,



Sarah said...

Glad to hear you're feeling better about how things are going -- and YAY for Gaines! Slow and steady progress is great news. :)

Avery Tales said...

So glad to hear that Gaines is doing so well!! I'm sure Reed sounds so cute when he says his name! We've been working with Jeffrey on saying his name and it comes out sounding like Effee Avee or Jeffrey Avery. They are so funny at this age!