So remember two nights ago when I asked for you all to please pray for him to start taking his bottles better? Well guess what. Gaines took a whole bottle today at his two o'clock feeding! Beau and I (and all the nurses) are so excited. I pray that he's able to do it again tonight and that it wasn't just a fluke. Right now he is supposed to be trying the bottle twice a day...every 12 hours. Hopefully he'll do well tonight and tomorrow be able to pick up the bottle a little more often.
Today's doctor changed several things, including his milk concoction, so that could be what got him going today. His food might taste better without all the extra additives in it. His milk was being supplemented with one kind of formula and MCT oil (and maybe a few other things) to make it more caloric. They are now only supplementing with a preemie formula. I'm hoping that this change will get the little guy excited about eating.
The doctor also took Gaines off of his Reglan and Zantac (both were for his reflux) and his Lasix. A lot of big changes. I'm curious to see if he can handle it. We've known all along that Gaines is on a LOT of medicines and I think now that the doctor (this one anyway) wants to try and get rid of some. I'm ok with trying...they can always add them back.
Also, his oxygen is back down to 50% which is just about where is was on Monday when they changed his parameters and we had to bump him to 70%. I am so thankful for that because even with the new parameters and the loss of one dose of Lasix (the no Lasix deal started today but he lost one dose on Monday) he's able to bring his oxygen requirement down. I am loving this progress and PRAY that it keeps up.
Today has been a much needed good day. I've had a pretty rough week with all the doctor craziness and everything. I know that doctor changes may seem silly to some of you but in this situation, all we can do is trust the doctors...I don't know how to make Gaines better. Its just when their plans/ideas conflict with each other you lose some of that ability to trust them and it adds a lot of stress to an already stressful situation.
Several times this week I have just been in tears because I am so emotionally tired of this. It has been a long 5 months (PS...Gaines will be 4 months on Monday). I'm so tired of being strong and there are many days that I just want to curl up in bed and pretend this never happened. The good news is that Gaines isn't giving up and I'm sure not either. If that little baby can keep fighting, so can I. Even when I think I can't take another day.
Please continue to keep Gaines in your prayers. Keep praying for his lungs and for those bottle feedings. Today was huge but he still has a long way to go. Also, please keep all of the NICU babies and their families in your prayers. For many parents their NICU journey is just beginning.
Love to all,