I feel like every post's title lately has an exclamation point on it...and if they don't they should. Gaines got turned down to 2 liters today and seems to be doing pretty well with it so far. I'm so proud of him. Also, he's taken his last four feedings by bottle. I'll find out how he did at his 8 p.m. feeding when I call in a little while. If he took it by bottle, its a new record. The doctor today wrote orders to feed Gaines by bottle at any feeding that he was awake and alert. Basically just to use their judgement and not force him into anything that he's not up for. Going to 2 liters today is a big enough adjustment.
I'm slowly warming to the idea that maybe this NICU experience could be slowly wrapping up (in the next several weeks...not tomorrow or anything). There...I said it and I've probably jinxed things now. I'm scared to death to admit that because I'm terrified of being wrong. Even now I'm thinking about deleting that sentence. I'm so afraid to hope but the tiny piece of me that I'm letting hope is so excited. I don't know if any of that makes sense. This feeling is so weird and impossible to put into words. Even for me...HA!
Please keep Gaines in your prayers. Pray that he is able to take a full day of bottles soon and for his lungs to continue healing. Pray that he tolerates 2 liters well and that soon he'll be able to wean down again soon.
Love to all,