When I visited Gaines today he was back around 33%...thank you God. He actually got up to 42% and the nurse had a doctor look at him. They gave him an extra dose of Lasix (ps...I've been misspelling it) and increased his dosage of the ampa-whatever. He had a big wet diaper and they were able to wean him back down. He was at 34% when I left so I feel better. Please continue to keep him in your prayers.
Love to all,
Brittany
5 comments:
I haven't made any comments lately but I still check the blog daily to see how Gaines is progressing. Please let me know if you guys need anything. Keeping you all in our thoughts and prayers.
Its hard when you are at the forfront of all this. I found when my little girl was in the nicu it was one step foward a few back. I want to also tell you that it is ok to cry and get upset. I still remember feeling tormented when I had to go back to the hotel not knowing what was next. I also remember running actually walking very fast when it was time to leave with her. Our prayers are with you and Gaines.
Hi Brittany-Just wanted to let you know I have been following your blog and I think you all are a pretty amazing family. I can't say I know what you are going through but just know that God is in control. I will continue to pray & hope for brighter days to come. Hang in there and continue to stick together. I don't know if you have ever heard the song "Walk by Faith" by Jeremy Camp but it is a great song & thought you might enjoy it.
Leslie
Glad to hear that Gaines oxygen is back down. I am sure you are relieved. We will be praying for his little lungs to mature and that the holes in his little heart would close so that he no longer needs Lasix.
Continuing to pray for your family...
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