Brudah Gene

For the longest time Reed didn't acknowledge that he had a brother. I'm still not totally sure that he gets it but now he will say "brudah" when he sees a picture of Gaines. When you ask what his name is he tries to say Gaines but it comes out "Gene". Now Gene is a perfectly nice name but I really hope that it doesn't stick...I'm kind of partial to Gaines.

Gaines is actually doing really great today. Last night he got down to 33% oxygen and has stayed there all day. They tried to bump him down to 32% today but he didn't go for that. It's amazing that one percent makes that big of a difference. He didn't do so great on his weight last night though. He lost 110 grams. That's a lot for such a little guy...about 3 ounces. The doctors don't seem too concerned. They feel like its because of his new diuretic.

He is now getting another diuretic (in addition to the lasiks) called aldacta-something. This is at the recommendation of the cardiologist. That started yesterday and his oxygen came down so it seems to be working. I pray that he's able to get to 32% soon.

I want to grab on to this little bit of progress and hope that its the beginning of some big progress but I'm so afraid to. I really think he'll probably hold on to this for a few days and then maybe come down a little more. I guess only time will tell.

Everything else is still going well. I got to hold Gaines this afternoon. I've figured out that if I go around 4:00, he's awake and pretty alert. Oh, he seems to be doing well on his four hour schedule. His nurse last night said that he was an angel. I'd say that's a lot better than feisty.

I need to run. Reed is asking for his turn at the computer. :)

Love to all,

Brittany