Gaines had another pretty good day today. He is still on 2 liters at 100% and will probably be there most of the week. The doctor wants to give him plenty of time to get over last weekend's spell. He is also now on a daily dose of lasix...thank you very much. I've only been screaming this for how long now? Just kidding...kind of. I know the doctors know a LOT more about this than me but I just really feel like that's what he needs right now.
The plan is to try and wean Gaines down to 1 liter before he is released. He may still be released on 2 if he just won't go down anymore right now but I think we'd all feel better if he was at 1 liter. That way he would have a little wiggle room at home should he need it. The only other thing to do is to get him off the humidified air. Right now his air is humidified only to make it more comfortable for him to breathe...un-humidified air is very dry apparently. As his flow gets lower, humidified air becomes less of an issue so they will try and wean his flow some first.
Today's doctor told me that he didn't think it would be this week, and probably not the next but maybe after that. I take that to mean about 3 more weeks. I think they want to try and stabalize his feedings and medications as well as get him stable on whatever oxygen he needs right now. Pretty exciting.
I think that's about it for tonight. It's been a busy evening and I'm tired. Reed has been waking up at the crack of dawn (4:30 a.m. some days) and this morning was my turn with him. A friend of mine thinks he's part rooster. He's not crying or anything. Quite the opposite. He wakes up and is ready to start the day. Its hard to be upset with him because he's so sweet and happy but it makes for a very long day.
Please continue to keep Gaines in your prayers as we try and get through this home stretch (I pray that it is the home stretch). Please pray for his lungs and that he can handle one liter very soon. Also, please pray for patience for his mother...I am getting soooo tired of hospitals. I can't wait have my family under one roof.
Love to all,