It seems as though every week there is something new to worry about. This week the worry has been weight gain. Gaines gained a good amount of weight his first week home from the hospital...almost too much. He gained 9 ounces his first week at home weighing in at 10 pounds 10 ounces last Friday. He then lost weight last weekend and weighed in at 10 pounds 8 ounces this past Tuesday. Brittany and I were concerned. The Pulmonologist made it very clear that Gaines will get better as he grows. It was disheartening to see him lose weight. Since Tuesday we have been praying for weight gain. He was scheduled to be weighed today and we were hoping he would gain two, maybe three ounces. He was weighed this morning and he had gained 4 ounces and now weighs 10 pounds 12 ounces! I know all of this sounds kind of ridiculous...worrying about ounces. Its just that Gaines will get better by making small steps and we get excited when we see him moving forward.
Gaines also had his first physical therapy appointment this week. The therapist thought the tone problems in his legs was limited to his hamstrings. The therapists showed us specific stretches we should do with Gaines to help. The therapist also showed us several activities that Gaines can do that will help him develop. We take him back for physical therapy again next week.
Not much else to update right now. Please continue to pray for Gaines to grow and for his lungs to heal. Also, please pray that our household remains healthy.