Ok…I haven’t had a ton of time lately but here is a quick post about Gaines’ pulmonology appointment this past Monday. I think I’ll do it in bullets. Like a list. I love a good list.
-We got permission to turn Gaines' oxygen down to a quarter of a liter. He seems to be doing great on it so far. His sats have been great and we even see 100 (perfect) from time to time. He’s been breathing a little harder than normal but that is to be expected until he gets used to this. My only slight concern is that he spit up last night (his reflux tends to flare up when he’s working harder to breathe) and he hasn’t been super excited about taking his bottles. I’m hoping that gets better as he gets more used to less oxygen. We are trying to take it easy with him on the eating but you all know how important weight gain is for his lung health so we do still want him eating well. It would make no sense for him to be on less oxygen if he is taking in less calories and burning more calories to breathe. I’ll keep you posted on this but I THINK he’s doing pretty well on a quarter liter.
-Weight gain-18 lbs 12 oz. AWESOME. So proud of Gaines. The doctor and nutritionist were very happy as well. The doctor even said that he was starting to worry about Gaines’ weight but not anymore. Yay! Now we just need to keep it up. His new goal is 1000 calories a day. That is 83 cheese puffs. Kidding. It is actually 83 cheese puffs but 720 calories a day come from his pediasure. He eats peanut butter now so that is a big help in getting him healthy fats/calories. I just don’t feel right dumping melted butter on everything he eats. I’m afraid he’ll have a heart attack at age 8.
-Hernia Surgery-Not looking forward to this one but I am looking forward to putting it behind us. Its been hanging over our heads forever now so I’m ready to mark it off the list. I am TERRIFIED to have Gaines put under anesthesia but I know it has to happen at some point. His lung doctor assures me that he is ready (and I’ve threatened him with his life on this) and the urologist thinks we run a risk of something called constriction (I might be making that word up but something along those lines where the intestines would be stuck down there). Not good…SO, we’ll be doing that in a few weeks. I’ll keep you posted. It will be mid-September so we do still have a little while.
-No medicine changes but the doctor remarked how small the doses are now compared to Gaines’ size so I take that as a good thing.
I think that is about it medically.
Gaines has a pretty good bruise on his forehead and a busted lip but I take those as good things. He’s learning to come down the brick stairs in our den and loves to climb on anything he can. Reed kept a bruise on his head about this age.
Reed is still pretty sweet although he did get sent to timeout yesterday for hitting me with a golf club. Thanks mom…those were a great idea. He did a "candid ball" off the diving board yesterday and also helped me put the "sheeps" on his bed.
Love my two little boys!
Love to all,