Gaines Update and Two Funnies (to their mama anyway)

Poor Beau. All that typing and only one little comment. If you haven’t read Beau’s post below about our crazy weekend, you should its pretty funny. I just wanted to post a quick update about the Gaineser. He gets called Gaineser fairly regularly these days. Hopefully that won’t stick but I think it kind of makes him sound larger than life…which he kind of is…he definitely thinks he is anyway.

Sorry…tangent. I took both boys to the doctor Monday morning and out of 4 ears, we had two infected and two full of fluid. Two prescriptions and two co-pays later, I think the boys are on the mend. Gaines actually slept until 6:30 this morning. Awesome. As awesome as that news is, this is the real awesome news and the reason for this quick post: Gaines weighed 18 lbs 9 oz at the doctor Monday. Granted he had on clothes and a dry diaper but those cannot weigh that much…maybe an ounce each? At his last weigh in at the end of June, he was 17 lbs 6 oz (naked). That’s more than a pound in less than a month. YAY! He is still not on the growth chart scale (even for his adjusted age of 1 year) but hopefully, if this keeps up, he’ll be in the 3rd percentile by his next official weigh in August 2. Thank you for all of your weight gain prayers and please keep them up! It was such a relief and (takes some pressure off) to see some good improvement.

I’ll try and get back to regular posting. Summer has just been so busy but I think August brings us a little break.

Oh, and to answer the two comment questions…Beau went to high school in Montgomery, his parents moved to Birmingham after he graduated. And we have no idea when Gaines will get off the oxygen. I’d hoped by now but I think the weight slump was slowing him down. I HOPE to get the ok to go to a ¼ liter at his next appointment. I think he can handle it. The doctor’s plan has been for him to get off diuretics first and then worry about oxygen but I hope that he and I can have a real heart to heart about that. I know that I’m not a pulmonologist and I do not want to risk Gaines’ health in any way but I feel like the oxygen could be holding him back in other areas like socialization, sleeping issues (he STILL sleeps in our room), some discipline things, etc.…I could be way off but, we’ll just see what we work out. Its worth a conversation to me.

Oh, and can I please just tell you something kind of funny? I try to be patient and understanding when people ask about Gaines’ oxygen, especially when it’s another child that just doesn’t understand (I have no patience for any adult that asks things like “What’s wrong with him?” That’s a good way to get punched in the face, FYI. Questions are fine, “What’s wrong with him?” is not…sorry, just had to get that off my chest). I don’t love all the questions because really, no one wants their child to be any different than any other, but I’d rather people ask so they can be informed instead of ignorant (can you tell this is a touch subject for me?). Kids are especially curious and the other day at the pool, one little boy asked, “Does that help him swim?” I had to laugh. It was just too funny to me.

One last funny thing, I’ve always told Reed how cute his little hiney is and lately he’s actually started listening. Last night I was giving Gaines a bath and Reed was taking his clothes off to get ready for his turn and he came in the bathroom and said, “Hey mama…I got a prize for you!” He then turned around and said, “Cute hiney! Cute hiney!” I just loved that his prize for me was his cute hiney.

Love to all,

Brittany