Sorry for the hiatus. I've been out of town. I had a conference in Perdido that I had to be at for a few days and once I got back...well, I really wasn't in the mood for blogging...just wanted to soak up my family. We've had quite a few developments in the last several days so I think I'll post them in a list format.
1. Gaines now has his own room. He's had his own room all along but he couldn't reach his room as his concentrator had been set up and he can't really sleep in there yet so his home base was our den. Like, his clothes and all his belongings had been stored in various hiding places in the den for almost a year so I'm pretty pumped to have all his stuff where it belongs. We did some maneuvering and now Gaines can access his own room. He can't sleep in there yet but we are actively trying to find a solution to that. I'm thinking it will involve a video baby monitor rigged up so that we can see his sat monitor. If any of you have any thoughts on video baby monitors...please let me know. They are kind of expensive and I want to make sure it will work before I actually buy one.
2. The Gaines is getting a little tough love these days on taking naps. Until the last week, he'd been held to fall asleep (naps only...he goes to bed at night well) and then he started not sleeping so great at night. Long story short, our pediatrician thinks he needs to learn to start putting himself to sleep so that he can put himself back to sleep at 4 a.m. (when he's been making up). Basically its the cry it out approach. Its not going so great at the moment...fingers crossed that if we are persistent it will pay off. He's taking little 30 and 45 minute naps and I know he not getting rested. I'm giving it another week and then we'll have to reconsider. I'm all for the tough love because Lord knows, Gaines could use a little discipline in his life but he needs to rest too. Thoughts on this one???
3. We are pretty much t.v. free at our house right now. Beau and I decided over the weekend to really cut back on it for the boys and ourselves. Reed now gets 30 minutes a day (Wonder Pets right before bed to help him wind down) and Beau and I are trying to cut back too. I like it. We actually spend time as a family...a novel concept, I know. Puzzles and books and dance parties...Reed turned on some music tonight and started dancing and wanted everyone to dance so I played along. Beau walked in right after we had done the "Go Reed, Go Reed, Go, Go, Go Reed" and the whole "Go Mama" bit so we started up with "Go Daddy, Go Daddy"...expecting Beau to join in. I wish you could have seen the look on his face. He just froze and stared at us. I know its not funny to read but it was hilarious. There was no convincing Beau to take his turn in the spotlight.
4. Did you see the sunglasses Gaines was wearing in the last post? Well, Reed fell in love with them and wore them to school every day for a week. He even told me that "glasses make you cool". Two days ago they were in the floor and I stepped on them and broke them. I put them away and prayed that he would forgot about them. That lasted until our next trip outside when he asked for his "glasses". I had to tell him they were broken and there was a whole conversation that went something like this:
R-Did I break them?
Me-I don't know...they are just broken.
R-I broke them.
Me-No you didn't baby...
R-Who broke them?
Me-It doesn't matter who broke them...they just broke.
R-I broke them (sad face here)
Me-No Reed, mama stepped on them and broke them on accident. Maybe you and I can go buy you a new pair.
R-But I only want my blue ones...
Knife in my heart. I felt terrible.
5. Reed loves baseball and got a new t-ball set this weekend. I don't know who was more excited, Beau or Reed. I know I'm his mother so I'm biased but he's really pretty good.
6. Also, can you believe that one year ago yesterday we got the phone call that Gaines was getting transferred home. That was such a good day. I cannot even tell you the weight that was lifted off of me that afternoon. I felt physically lighter. Also, tomorrow is the day that Gaines should be a year old. He's doing so awesome right now. He pushed a push toy across his room today. He's been walking on furniture sideways for a while now but this is actual one foot in front of the other. I cannot tell y'all how proud I am of that boy.
7. Gaines went to church for the first time this weekend. Technically his second time if you count his baby dedication but his first time in the nursery while we went to church and Sunday School. Yay!
Ok...I think that's about it. I'm going to try and get my assistant to post pictures soon. I'll be better about the blogging but I'm tired now. Peace out.
Brittany
Tuesday, July 6, 2010
Sunday, June 27, 2010
Beads, Crazy Hats & Sunglasses
This past week I spent a couple of days in New Orleans on business. Bless my wife, she kept both boys by herself. When I came home on Saturday Reed immediately asked for the "prizes" I promised to bring him. Reed loved his hat and beads while Gaines loved the sunglasses. 
Thursday, June 24, 2010
My Boys
My little Gaines has been quite the handful lately. This child is into everything all the time and no matter where you are going or what you are doing, he’s right behind you. I tried to paint my toenails last night and got about half a toe painted and guess who showed up? Turn on the hair dryer and 3 seconds later you’ll see a little head pop around the corner with a big ole smile on his face. Don’t even think about loading or unloading the dishwasher. If he hears water running or dishes clanging, Gaines will be there. I seriously have to be very careful not to let the plates or silverware hit each other if I’m trying to put something in the dishwasher. That, and I do it very fast because I know if I stand still too long he’ll catch up to me. If he’s around, I’ll only open the dishwasher a crack and shove whatever it is in there. Kristen told me yesterday that she went to rinse off a dish to put it in the dishwasher and by the time she turned around, he was standing on the open door holding on to the top shelf.
Gaines loves to be held and feels like he’s entitled to be held 100% of the day. If he’s not being held he’s either begging to be held or asleep…and honestly, he takes the best naps when he’s being held. Lately, we’ve been trying to not just immediately pick him up when he wants…at some point he does need to learn that the world does not completely revolve around him, but that usually doesn’t go very well. He’s taken to gagging himself if he doesn’t get his way. I think it’s because when his reflux was so bad, anytime he’d gag we’d immediately quit what we were doing to attend to him. He knows what he’s doing. We’ve been working on understanding the word “no” and that screaming at the top of your lungs (no tears, just screaming) to get someone to pick you up is not acceptable. Usually it’s just an Ahhhh! scream but sometimes you get a high pitched girly scream. It’s lovely.
The good news is that he still gives his good hugs and is the best snuggler. He loves to put his forehead to yours and smile. It pretty much melts my heart. He’s also gotten a lot more fun with his inquisitiveness and since I can remember Reed being this way, I’m a little relieved that he’s doing “normal” things. Plus, Reed was a big fan of putting things in/playing in the toilet and thus far Gaines hasn’t seemed that interested in the toilet (other than flushing) so I guess I have that to be thankful for…or look forward to since I probably just jinxed myself.
Reed is still pretty well on a good streak. Deep down he loves Gaines but he’s not really a big fan of the way Gaines plays right now. Reed is a rough little boy but he doesn’t appreciate Gaines’ roughness when he’s trying to watch cartoons or something. Plus Gaines is a bit (understatement of the year) of a hair puller and I feel Reed’s pain on that one. I can barely be around Gaines without my hair in a pony tail.
Yesterday Reed was in the bathtub and Gaines was at his perch tub-side watching. I was in the kitchen (where I can see both of them) and I heard Reed telling Gaines “No, Gaines…that’s not the right thing! That’s not the right thing!” I went to check on the situation and Reed was upset with him for knocking his one of his “boys” (three plastic fish) from the side of the tub into the water. You know, a major devastation. However, there have been a lot of nights when Reed will entice Gaines over to the tub…Really sweetly he’ll say ”Come here Gaineser…” and when Gaines gets there, Reed makes a big splash and gets Gaines all wet. Which of course Gaines thinks is hilarious and encourages Reed all the more.
My sweet Reed has also started either repeating his prayers after me or saying them on his own and hearing his sweet little voice say his prayers is precious. And if he feels led to thank God for his Spiderman stickers some nights, it just makes me smile all the more.
That’s the update for now.
Love to all,
Brittany
Gaines loves to be held and feels like he’s entitled to be held 100% of the day. If he’s not being held he’s either begging to be held or asleep…and honestly, he takes the best naps when he’s being held. Lately, we’ve been trying to not just immediately pick him up when he wants…at some point he does need to learn that the world does not completely revolve around him, but that usually doesn’t go very well. He’s taken to gagging himself if he doesn’t get his way. I think it’s because when his reflux was so bad, anytime he’d gag we’d immediately quit what we were doing to attend to him. He knows what he’s doing. We’ve been working on understanding the word “no” and that screaming at the top of your lungs (no tears, just screaming) to get someone to pick you up is not acceptable. Usually it’s just an Ahhhh! scream but sometimes you get a high pitched girly scream. It’s lovely.
The good news is that he still gives his good hugs and is the best snuggler. He loves to put his forehead to yours and smile. It pretty much melts my heart. He’s also gotten a lot more fun with his inquisitiveness and since I can remember Reed being this way, I’m a little relieved that he’s doing “normal” things. Plus, Reed was a big fan of putting things in/playing in the toilet and thus far Gaines hasn’t seemed that interested in the toilet (other than flushing) so I guess I have that to be thankful for…or look forward to since I probably just jinxed myself.
Reed is still pretty well on a good streak. Deep down he loves Gaines but he’s not really a big fan of the way Gaines plays right now. Reed is a rough little boy but he doesn’t appreciate Gaines’ roughness when he’s trying to watch cartoons or something. Plus Gaines is a bit (understatement of the year) of a hair puller and I feel Reed’s pain on that one. I can barely be around Gaines without my hair in a pony tail.
Yesterday Reed was in the bathtub and Gaines was at his perch tub-side watching. I was in the kitchen (where I can see both of them) and I heard Reed telling Gaines “No, Gaines…that’s not the right thing! That’s not the right thing!” I went to check on the situation and Reed was upset with him for knocking his one of his “boys” (three plastic fish) from the side of the tub into the water. You know, a major devastation. However, there have been a lot of nights when Reed will entice Gaines over to the tub…Really sweetly he’ll say ”Come here Gaineser…” and when Gaines gets there, Reed makes a big splash and gets Gaines all wet. Which of course Gaines thinks is hilarious and encourages Reed all the more.
My sweet Reed has also started either repeating his prayers after me or saying them on his own and hearing his sweet little voice say his prayers is precious. And if he feels led to thank God for his Spiderman stickers some nights, it just makes me smile all the more.
That’s the update for now.
Love to all,
Brittany
Tuesday, June 22, 2010
Gaines Fish
Tonight I was giving Gaines a bath and Reed was "helping" me. He was holding Gaines' oxygen line and told me he was fishing...like Gaines oxygen cord was the fishing line. All of a sudden he looked and me all wide-eyed and said, "I got somethin'...Its a Gaines-fish! I caught a Gaines-fish mama!"
I just thought it was cute and clever.
Love to all,
Brittany
I just thought it was cute and clever.
Love to all,
Brittany
Sunday, June 20, 2010
Gaines Eats
So, guess what. Gaines eats now. We've only been stressing about this for how long now? All of a sudden, he acts like he's been eating his whole life.
Earlier this week we decided to cut back from four 195 cc bottles to three 240 cc bottles (and yes, we still measure his bottles in ccs...a nod to the NICU days) and have tried to make up the missing calories with real food. The nutritionist/pulmonologist want him having so many calories a day and since his pediaure is the best way to get them (just a lot of calories in them) they've been pushing those but they keep him from wanting to eat real food which the pediatrician/therapists/myself think he needs to be eating. Basically we kept him so full of pediasure that he never got hungry. So far, I think he's making up more than enough calories with this new plan and it has made life so much more enjoyable.
Now, I do feel like I'm setting him up to have terrible eating habits later in life because we feed him all this junk food (higher calories than the healthy stuff) but whatever it takes to fatten him up. Cheese puffs are the current favorite...and side note, I forgot how delicious they are. He also eats these pound cake muffins that I found, macaroni and cheese, chicken nuggets, crackers with butter, carrots cooked in butter and sugar, cookies, brownies, french fries, peaches (that's healthy), etc. If any of you have any ideas of foods that are high calorie and easy for a 1 year old to eat, please, send them my way. I think peanut butter would be good...I just don't know that he's ready for that yet.
The hard part is feeding Gaines the high calorie stuff and not feeding it to Reed. Or trying to cook fattening things for Gaines that won't fatten up the rest of us. He doesn't eat huge quantities so it doesn't make since to make a whole chicken and rice casserole for just him...which means we will all be eating chicken and rice casserole tomorrow night...and I will be going on a run...and I guess the Gaines will get all the leftovers...for the rest of the week. I've just been trying to cook a little lighter now that its summer.
I'm sorry this post is so random. I'm just typing.
This morning Reed gave Beau a card that he made him at school. In the card was a picture of Reed wearing a maroon t-shirt and a cowboy hat. I asked the teacher what that was about and she said they let all the kids choose from the play clothes in the "home-living" center and told them to choose something their dad would wear...or something like that. Now...I've known Beau a good 7 years now and I have NEVER seen him even think about wearing a cowboy hat but apparently, that's how Reed pictures him. Beau looked at me this morning and said, "What does he think I do?" It was all pretty funny. I love Beau but he's not exactly the rugged cowboy type. Later in the morning Beau asked Reed what daddy's job was and Reed thought for a minute and said, "Cutting the grass". I'm trying to teach him to say that daddy is a businessman. I think that's hilarious for some reason.
All in all we've had a good day and a good week. Gaines eating makes life so much easier. Less bottle fighting and less stressing because he won't eat "real" food. Next step...sippy cup.
That's all I've got for now.
Love to all,
Brittany
Earlier this week we decided to cut back from four 195 cc bottles to three 240 cc bottles (and yes, we still measure his bottles in ccs...a nod to the NICU days) and have tried to make up the missing calories with real food. The nutritionist/pulmonologist want him having so many calories a day and since his pediaure is the best way to get them (just a lot of calories in them) they've been pushing those but they keep him from wanting to eat real food which the pediatrician/therapists/myself think he needs to be eating. Basically we kept him so full of pediasure that he never got hungry. So far, I think he's making up more than enough calories with this new plan and it has made life so much more enjoyable.
Now, I do feel like I'm setting him up to have terrible eating habits later in life because we feed him all this junk food (higher calories than the healthy stuff) but whatever it takes to fatten him up. Cheese puffs are the current favorite...and side note, I forgot how delicious they are. He also eats these pound cake muffins that I found, macaroni and cheese, chicken nuggets, crackers with butter, carrots cooked in butter and sugar, cookies, brownies, french fries, peaches (that's healthy), etc. If any of you have any ideas of foods that are high calorie and easy for a 1 year old to eat, please, send them my way. I think peanut butter would be good...I just don't know that he's ready for that yet.
The hard part is feeding Gaines the high calorie stuff and not feeding it to Reed. Or trying to cook fattening things for Gaines that won't fatten up the rest of us. He doesn't eat huge quantities so it doesn't make since to make a whole chicken and rice casserole for just him...which means we will all be eating chicken and rice casserole tomorrow night...and I will be going on a run...and I guess the Gaines will get all the leftovers...for the rest of the week. I've just been trying to cook a little lighter now that its summer.
I'm sorry this post is so random. I'm just typing.
This morning Reed gave Beau a card that he made him at school. In the card was a picture of Reed wearing a maroon t-shirt and a cowboy hat. I asked the teacher what that was about and she said they let all the kids choose from the play clothes in the "home-living" center and told them to choose something their dad would wear...or something like that. Now...I've known Beau a good 7 years now and I have NEVER seen him even think about wearing a cowboy hat but apparently, that's how Reed pictures him. Beau looked at me this morning and said, "What does he think I do?" It was all pretty funny. I love Beau but he's not exactly the rugged cowboy type. Later in the morning Beau asked Reed what daddy's job was and Reed thought for a minute and said, "Cutting the grass". I'm trying to teach him to say that daddy is a businessman. I think that's hilarious for some reason.
All in all we've had a good day and a good week. Gaines eating makes life so much easier. Less bottle fighting and less stressing because he won't eat "real" food. Next step...sippy cup.
That's all I've got for now.
Love to all,
Brittany
Monday, June 14, 2010
Still Alive
Ok…I know that I’ve been a total slacker on the blog as of late but I have very good reasons for that. 1. I was out of town for a week. I tried to update at night from my hotel but my work computer wouldn’t allow it for some reason. 2. Once I got back I had trouble getting on the Internet the two times I tried. 3. I finally got the Internet working and typed a long blog only to lose it when I tried to post it. 4. After that devastation I just gave up for about a week. I’m re-inspired today though. I have lots to report. This might be long.
First, we tried Gaines on only half of the diuretics he was used to but that didn’t last long. He started breathing harder and quit eating because it was hard for him to do both at once. We took him to our pediatrician and he felt like the diuretics were the problem. He’s back on them now and is breathing much easier and eating better…he never eats great but definitely back to normal. I was pretty devastated over that whole business…to say the least. Beau took Gaines to the doctor that morning as I drove to my out-of-town work thing. When he called to confirm that the diuretics were the culprit (as we were expecting) I pretty much lost it. I was/am SO ready to put this whole oxygen thing behind us. That day I’d just had all that I could stand and cried my little eyes out as I drove. As I cried I begged God to just make him better. Told Him I’d learned all that I needed to learn, that my patience had been tested enough, that I’d been positive for long enough, that I was ready to be done with all of this.
Somewhere along the way I dried it up and came out with a better attitude. I realized that once things get to going better, I start thinking that I’m in control and that I’m handling my life. This little episode was on a much smaller scale than the whole DC experience but I realized it was God breaking me…again. It was his way of reminding me that He is in control and that I can either do this the easy way and let him handle it while I just keep the faith and get out of the way, or I could cry and kick and scream and complain about doctors appointments, and not eating and weight gain and dragging around oxygen tanks and every thing else that comes with it. I decided to make the smart choice and quit worrying and trying to “fix” Gaines myself. Sometimes I get so focused on the destination that I forget I’m worrying my life away. As cheesy as it sounds, I always blare that Miley Cyrus song whenever it comes on…something about mountains…The Climb maybe? I don’t have it on cd or anything (do people still buy cds?) but I definitely sing my little heart out when it comes on the radio.
So…Gaines is back on diuretics and we are focusing on weight gain. I will not bore you with all the details of that but basically our pediatrician/therapists and pulmonologist/nutritionist are on opposite ends of the spectrum when it comes to what they think we should be doing. Awesome. Have I told y’all my thoughts on doctors lately? I appreciate all of them individually…I really do but this business about not being on the same page…annoying. I tell my mom all the time, if any of them knew the right thing to tell us…they’d all be telling us the same thing. So, my solution is to take both sets of advice (and lets be honest…that’s all it really is isn’t it?) and coming up with my (our) own plan. It changes daily…pretty much based on Gaines’ moods…and the moods that I’m in based on his cooperation level. That child is lucky he’s so cute and sweet (90% of the time) and gives good hugs. He’s a lot of work…good thing I love him.
Let’s see…what else? Beau and I celebrated our 6th anniversary. It was nice. I’m pretty lucky to have him. I could not have made it through this past year without him. It’s been a hard year. Not just on each of us individually but together. He might not like me admitting that on here but its true and I’m trying to be honest. When we were in DC, it was he and I against the world…you know-we were together and focused pretty much on one thing…Gaines. Now that we’ve been back, we have life to contend with and haven’t had a ton of time for each other. We are getting better at that. I’m thankful for a sister who baby-sits and for life getting a little easier and allowing for time to just sit on the couch and watch TV together. I’m also trying to make that more of a priority than my daily to do list.
My birthday was this past weekend. Beau has been trying to make fun of me for being old but it really doesn’t bother me. I made up my mind a while back…probably when I turned 22 and in my mind, “adult”…that I wasn’t going to be worried about how old I was. I am 29 years old and have the life I’ve always wanted. A wonderful husband, two beautiful boys, a great dog, a house I love when I’m not pouring money into it, a job that I actually enjoy, a church that I love, good friends, good health (insurance!), a great extended family…and I could go on and on but you get the picture.
Reed has been pretty sweet as of late. Not sure what’s gotten into him but he’s just so lovable right now. Kidding…he’s always lovable but he’s on a good streak right now. Of course he tests us from time to time but no major issues. He told me the other night that he loved me “on purpose”. Not really sure what he meant by that but I’ll take it. Also, I tried on a dress for Beau last night that I’d just bought to see what he thought about it. Beau was kind of iffy on it but Reed said, “I love that dress, mama”. I just looked at Beau and smiled a smirky smile. Also last night I brought home McDonalds for dinner (which we do not do on a regular basis but we’d been out of town for the weekend and had not been to the grocery store), as I was getting it all set out Reed was saying “I can’t wait!” over and over. I think it was the Sprite. He loves a good Sprite.
The other day, Gaines knocked something over and it made a big crash sound. Reed looked and me and said, “Get him a big, giant spanking”.
One other thing about Reed. He said something about a sister the other day and I told him that he didn’t have a sister but that I did. That Abby was my sister. Reed thought for a second and said, “My sister is Pop (my dad)”.
Also, from time to time, Reed will do sweet things and I’ll tell him that it makes my heart happy. The other day he went to the bathroom came out with no underwear on. I asked where it was and he told me he didn’t need to wear his underwear. I asked him why not and he said, “Because it makes my heart happy”. He was instructed to wear it anyway.
Love to all,
Brittany
First, we tried Gaines on only half of the diuretics he was used to but that didn’t last long. He started breathing harder and quit eating because it was hard for him to do both at once. We took him to our pediatrician and he felt like the diuretics were the problem. He’s back on them now and is breathing much easier and eating better…he never eats great but definitely back to normal. I was pretty devastated over that whole business…to say the least. Beau took Gaines to the doctor that morning as I drove to my out-of-town work thing. When he called to confirm that the diuretics were the culprit (as we were expecting) I pretty much lost it. I was/am SO ready to put this whole oxygen thing behind us. That day I’d just had all that I could stand and cried my little eyes out as I drove. As I cried I begged God to just make him better. Told Him I’d learned all that I needed to learn, that my patience had been tested enough, that I’d been positive for long enough, that I was ready to be done with all of this.
Somewhere along the way I dried it up and came out with a better attitude. I realized that once things get to going better, I start thinking that I’m in control and that I’m handling my life. This little episode was on a much smaller scale than the whole DC experience but I realized it was God breaking me…again. It was his way of reminding me that He is in control and that I can either do this the easy way and let him handle it while I just keep the faith and get out of the way, or I could cry and kick and scream and complain about doctors appointments, and not eating and weight gain and dragging around oxygen tanks and every thing else that comes with it. I decided to make the smart choice and quit worrying and trying to “fix” Gaines myself. Sometimes I get so focused on the destination that I forget I’m worrying my life away. As cheesy as it sounds, I always blare that Miley Cyrus song whenever it comes on…something about mountains…The Climb maybe? I don’t have it on cd or anything (do people still buy cds?) but I definitely sing my little heart out when it comes on the radio.
So…Gaines is back on diuretics and we are focusing on weight gain. I will not bore you with all the details of that but basically our pediatrician/therapists and pulmonologist/nutritionist are on opposite ends of the spectrum when it comes to what they think we should be doing. Awesome. Have I told y’all my thoughts on doctors lately? I appreciate all of them individually…I really do but this business about not being on the same page…annoying. I tell my mom all the time, if any of them knew the right thing to tell us…they’d all be telling us the same thing. So, my solution is to take both sets of advice (and lets be honest…that’s all it really is isn’t it?) and coming up with my (our) own plan. It changes daily…pretty much based on Gaines’ moods…and the moods that I’m in based on his cooperation level. That child is lucky he’s so cute and sweet (90% of the time) and gives good hugs. He’s a lot of work…good thing I love him.
Let’s see…what else? Beau and I celebrated our 6th anniversary. It was nice. I’m pretty lucky to have him. I could not have made it through this past year without him. It’s been a hard year. Not just on each of us individually but together. He might not like me admitting that on here but its true and I’m trying to be honest. When we were in DC, it was he and I against the world…you know-we were together and focused pretty much on one thing…Gaines. Now that we’ve been back, we have life to contend with and haven’t had a ton of time for each other. We are getting better at that. I’m thankful for a sister who baby-sits and for life getting a little easier and allowing for time to just sit on the couch and watch TV together. I’m also trying to make that more of a priority than my daily to do list.
My birthday was this past weekend. Beau has been trying to make fun of me for being old but it really doesn’t bother me. I made up my mind a while back…probably when I turned 22 and in my mind, “adult”…that I wasn’t going to be worried about how old I was. I am 29 years old and have the life I’ve always wanted. A wonderful husband, two beautiful boys, a great dog, a house I love when I’m not pouring money into it, a job that I actually enjoy, a church that I love, good friends, good health (insurance!), a great extended family…and I could go on and on but you get the picture.
Reed has been pretty sweet as of late. Not sure what’s gotten into him but he’s just so lovable right now. Kidding…he’s always lovable but he’s on a good streak right now. Of course he tests us from time to time but no major issues. He told me the other night that he loved me “on purpose”. Not really sure what he meant by that but I’ll take it. Also, I tried on a dress for Beau last night that I’d just bought to see what he thought about it. Beau was kind of iffy on it but Reed said, “I love that dress, mama”. I just looked at Beau and smiled a smirky smile. Also last night I brought home McDonalds for dinner (which we do not do on a regular basis but we’d been out of town for the weekend and had not been to the grocery store), as I was getting it all set out Reed was saying “I can’t wait!” over and over. I think it was the Sprite. He loves a good Sprite.
The other day, Gaines knocked something over and it made a big crash sound. Reed looked and me and said, “Get him a big, giant spanking”.
One other thing about Reed. He said something about a sister the other day and I told him that he didn’t have a sister but that I did. That Abby was my sister. Reed thought for a second and said, “My sister is Pop (my dad)”.
Also, from time to time, Reed will do sweet things and I’ll tell him that it makes my heart happy. The other day he went to the bathroom came out with no underwear on. I asked where it was and he told me he didn’t need to wear his underwear. I asked him why not and he said, “Because it makes my heart happy”. He was instructed to wear it anyway.
Love to all,
Brittany
Saturday, May 29, 2010
Good Day
It's been a good day. Just an awesome Saturday. I got up and went on a run. Reed and I hit the grocery store and came home to Beau and Gaines in a morning nap. Lunch out and then swimming. Both boys napped...AT THE SAME TIME. They actually fell asleep in the car so rather than risk getting them both in the house without anyone waking up we just rode around. Grilled hamburgers for dinner and everyone just getting along with no major issues. An awesome day.
Sorry for the lack of posting this week but its been a busy week. I gave myself Tuesday off because I had such a blah day on Monday. I seriously did nothing. Wednesday I straightened up and made a cake for the next day's company. Thursday we had some friends in town that spent the night with us. I served them a fabulous dinner of Pizza Hut but I did at least make a cake. Friday we planned to go to an outdoor symphony picnic event in town but it was thundering shortly before we planned to leave so we decided to just have our friends that we had planned to go with come over (and I know that is a crazy run on sentence). Its been a busy week but a good one.
Sorry...I got off track. I started that to tell you about the changes in the latest Gaines plan. I called Thursday to schedule Gaines' hernia surgery because, go figure, the urologist office hadn't called me like they were supposed to. The surgery is scheduled for September 13 but will probably be rescheduled if Gaines is not completely off oxygen by then. The urologist's nurse told me that anesthesia will not let them do an unnecessary surgery to a child on oxygen. Which, for those of you who cannot remember...IS EXACTLY WHAT I WAS SAYING.
Anyway, I called to let the pulmonologist know of this new development and find out what we can do to move forward with the oxygen/meds weaning. The new plan for that is to cut back on his diuretics from twice a day to once a day for two weeks. If that goes well, we'll cut them out all together. After two weeks of no diuretics, we can cut the oxygen to a quarter of a liter. That's as far as I've got right now but...the only thing to do after all of that, is to start with trials off oxygen. Please pray that this all goes well.
Also just a quick note because I know I sound a little jaded over all the doctor visits. I honestly, 100% appreciate each and every doctor and nurse that we see but I am just SO tired of the medical community as a whole. I mean every doctor tells you something different and you don't know who to listen to and doctors SPEAK TO EACH OTHER ON THE PHONE and then you go to schedule the surgery they discussed and...nope there was a miscommunication. And do not even get me started on billing and insurance issues. Do you know how many bills I would have paid that insurance covers if I hadn't been paying attention...or just given up on the negotiations between the insurance company and the billing department...because the two will not talk to each other. You have to be the mediator. Sorry for that rant...I'm just burned out on it all but certainly willing to do it. Have I mentioned how awesome Gaines is doing lately? He really is.
Man I'm using a lot of words tonight.
A quick note about Reed. He scraped his toe tonight and there was a little blood so we put a band aid on it for him. He immediately developed a limp.
Also...tonight he was in the tub and I heard him singing: "He drank up all the water, he ate up all the soap"...Who knows it?
Eener meener! Beau didn't know it and I couldn't remember much more of it so I had to look it up. Its been in my head all night.
I woke up Sunday morning
I looked up on the wall
The skeeters and the bed bugs
Were playing a game of ball
I'll let y'all look up the rest of the lyrics if you care.
One last thing. I had to take Reed to the doctor Friday...because we hadn't been in a week and we couldn't let a week get by without a trip to the doctor...but we learned that Reed had two ear infections. Awesome. Anyway, he and I were in the waiting room and we were looking at the letters of the word "pancake" that was on some kids' magazine. I was going over the letters of the word with him and got to the second A and asked him what it was...thinking that seeing the first A might trigger the correct response. He thought about it for a second and said, "Ummmm...Monday?" I guess we need to work on letters.
Alright...y'all have a good holiday weekend. Sorry for the most random post ever.
Love to all,
Brittany
Sorry for the lack of posting this week but its been a busy week. I gave myself Tuesday off because I had such a blah day on Monday. I seriously did nothing. Wednesday I straightened up and made a cake for the next day's company. Thursday we had some friends in town that spent the night with us. I served them a fabulous dinner of Pizza Hut but I did at least make a cake. Friday we planned to go to an outdoor symphony picnic event in town but it was thundering shortly before we planned to leave so we decided to just have our friends that we had planned to go with come over (and I know that is a crazy run on sentence). Its been a busy week but a good one.
Sorry...I got off track. I started that to tell you about the changes in the latest Gaines plan. I called Thursday to schedule Gaines' hernia surgery because, go figure, the urologist office hadn't called me like they were supposed to. The surgery is scheduled for September 13 but will probably be rescheduled if Gaines is not completely off oxygen by then. The urologist's nurse told me that anesthesia will not let them do an unnecessary surgery to a child on oxygen. Which, for those of you who cannot remember...IS EXACTLY WHAT I WAS SAYING.
Anyway, I called to let the pulmonologist know of this new development and find out what we can do to move forward with the oxygen/meds weaning. The new plan for that is to cut back on his diuretics from twice a day to once a day for two weeks. If that goes well, we'll cut them out all together. After two weeks of no diuretics, we can cut the oxygen to a quarter of a liter. That's as far as I've got right now but...the only thing to do after all of that, is to start with trials off oxygen. Please pray that this all goes well.
Also just a quick note because I know I sound a little jaded over all the doctor visits. I honestly, 100% appreciate each and every doctor and nurse that we see but I am just SO tired of the medical community as a whole. I mean every doctor tells you something different and you don't know who to listen to and doctors SPEAK TO EACH OTHER ON THE PHONE and then you go to schedule the surgery they discussed and...nope there was a miscommunication. And do not even get me started on billing and insurance issues. Do you know how many bills I would have paid that insurance covers if I hadn't been paying attention...or just given up on the negotiations between the insurance company and the billing department...because the two will not talk to each other. You have to be the mediator. Sorry for that rant...I'm just burned out on it all but certainly willing to do it. Have I mentioned how awesome Gaines is doing lately? He really is.
Man I'm using a lot of words tonight.
A quick note about Reed. He scraped his toe tonight and there was a little blood so we put a band aid on it for him. He immediately developed a limp.
Also...tonight he was in the tub and I heard him singing: "He drank up all the water, he ate up all the soap"...Who knows it?
Eener meener! Beau didn't know it and I couldn't remember much more of it so I had to look it up. Its been in my head all night.
I woke up Sunday morning
I looked up on the wall
The skeeters and the bed bugs
Were playing a game of ball
I'll let y'all look up the rest of the lyrics if you care.
One last thing. I had to take Reed to the doctor Friday...because we hadn't been in a week and we couldn't let a week get by without a trip to the doctor...but we learned that Reed had two ear infections. Awesome. Anyway, he and I were in the waiting room and we were looking at the letters of the word "pancake" that was on some kids' magazine. I was going over the letters of the word with him and got to the second A and asked him what it was...thinking that seeing the first A might trigger the correct response. He thought about it for a second and said, "Ummmm...Monday?" I guess we need to work on letters.
Alright...y'all have a good holiday weekend. Sorry for the most random post ever.
Love to all,
Brittany
Monday, May 24, 2010
Blah Day
Well...its been a day. Today was Gaines' pulmonology appointment and while it didn't go like we expected, it wasn't a bad report. I'm ok with it now but I sure wasn't when Beau called to fill me in...tears at work. Yeah...Here's the deal.
Beau took Gaines to his appointment today. With the hospital visit last week and some things we have coming up this summer, I just couldn't take off work again. Anyway, he called me pretty soon after they got to go back and let me know that not only had Gaines not gained any weight, he'd actually lost an ounce or two. Awesome. It was a let down to say the least. I knew he hadn't done great...but I didn't think he'd lost weight. And I know he's been sick and that's probably part of it but still...two months of no gain isn't great.
Luckily the doctor doesn't seem terribly concerned about it right now. Says he's probably just hit a plateau. The plan for that is to switch him from formula to Pediasure. Hopefully the extra calories will help. I've also got a side plan to get him to eat one sugar cookie a day. I think one Otis Spunkmeyer sugar cookie has 180 calories. That's kind of a half joke at the moment but I'm considering it. That would be huge for Gaines.
In other news...
We were hoping to lose diuretics today and that didn't happen. He didn't outgrow them.
We were hoping to get permission to cut oxygen and that didn't happen either. They don't want to push him too much before his surgery. Yep, I said surgery.
The hernia surgery that has been in the back of our minds for a while now but that I hadn't quite processed yet? Remember that one? I loved getting told today that my child was having surgery and I wasn't around to help make that decision. Felt like mother of the year over that one. Its not scheduled yet but it should be in the next 30 days. From what I understand its a minor procedure but before it happens, I will know every detail about what it all entails. For now, I'm still processing. For some reason, I was expecting this next summer...like when Gaines was off oxygen.
At least we are supposed to come up with a diuretic/oxygen plan a week or so after the surgery. Ughh...not excited about surgery.
Sigh...
So you see, it wasn't a bad report, but I was hoping for a great report and when nothing I'd hoped for happened...and I had a surgery sprung on me, tears at work ensued...and if I'm totally honest...five chocolate chip cookies with milk are currently being consumed...instead of the run that I had planned.
Prayers for weight gain and prayers for surgery would be much appreciated.
One last Reed thing. I was just sitting here typing this blog when I noticed that Reed was out of his bed. I told him to go back to bed and he told me he wanted to read his Bible. It was like he knew the one thing he could say without getting in trouble. He was sent back to bed to read it in the dark.
Love to all,
Brittany
P.S. Word to the wise...5 cookies is too many but it didn't stop me from shoving the last one down my throat. Now I feel gross. Great.
P.P.S. I'm not in some deep depression...just indulging myself in a blah day.
P.P.P.S. Someone get the cookies out of my house.
Beau took Gaines to his appointment today. With the hospital visit last week and some things we have coming up this summer, I just couldn't take off work again. Anyway, he called me pretty soon after they got to go back and let me know that not only had Gaines not gained any weight, he'd actually lost an ounce or two. Awesome. It was a let down to say the least. I knew he hadn't done great...but I didn't think he'd lost weight. And I know he's been sick and that's probably part of it but still...two months of no gain isn't great.
Luckily the doctor doesn't seem terribly concerned about it right now. Says he's probably just hit a plateau. The plan for that is to switch him from formula to Pediasure. Hopefully the extra calories will help. I've also got a side plan to get him to eat one sugar cookie a day. I think one Otis Spunkmeyer sugar cookie has 180 calories. That's kind of a half joke at the moment but I'm considering it. That would be huge for Gaines.
In other news...
We were hoping to lose diuretics today and that didn't happen. He didn't outgrow them.
We were hoping to get permission to cut oxygen and that didn't happen either. They don't want to push him too much before his surgery. Yep, I said surgery.
The hernia surgery that has been in the back of our minds for a while now but that I hadn't quite processed yet? Remember that one? I loved getting told today that my child was having surgery and I wasn't around to help make that decision. Felt like mother of the year over that one. Its not scheduled yet but it should be in the next 30 days. From what I understand its a minor procedure but before it happens, I will know every detail about what it all entails. For now, I'm still processing. For some reason, I was expecting this next summer...like when Gaines was off oxygen.
At least we are supposed to come up with a diuretic/oxygen plan a week or so after the surgery. Ughh...not excited about surgery.
Sigh...
So you see, it wasn't a bad report, but I was hoping for a great report and when nothing I'd hoped for happened...and I had a surgery sprung on me, tears at work ensued...and if I'm totally honest...five chocolate chip cookies with milk are currently being consumed...instead of the run that I had planned.
Prayers for weight gain and prayers for surgery would be much appreciated.
One last Reed thing. I was just sitting here typing this blog when I noticed that Reed was out of his bed. I told him to go back to bed and he told me he wanted to read his Bible. It was like he knew the one thing he could say without getting in trouble. He was sent back to bed to read it in the dark.
Love to all,
Brittany
P.S. Word to the wise...5 cookies is too many but it didn't stop me from shoving the last one down my throat. Now I feel gross. Great.
P.P.S. I'm not in some deep depression...just indulging myself in a blah day.
P.P.P.S. Someone get the cookies out of my house.
Sunday, May 23, 2010
Dud
Well...I don't have much to report. Its been kind of a low key weekend. Gaines has a pulmonology checkup tomorrow so say a little prayer that it goes well. We are hoping to lose the diuretics that he's on and get permission to cut him to a quarter of a liter. We'll also talk to them about an appetite stimulant. He's been doing better the last few days but I know he's not going to have gained much weight.
Like I said, he's doing better with the eating. He's still not consuming huge amounts but he's eating some without fighting and actually feeding himself some things. I learned today that he likes sugar cookies. Go figure. You can break a few small pieces off and he'll use his little pincher grasp (milestone...check) to eat them. No gagging at all. Makes me think he's been playing us this whole time.
Reed has been fun all weekend. Beau took him to a ballpark Saturday morning and he can't wait to go back. He just asked me as I kissed him goodnight if we could go to the ballgame tomorrow. Sweet boy.
Oh...one last quick thing. Reed and Beau went to church this morning. On the way, Reed said, "Daddy, you going to see Jesus soon". Say a little prayer for Beau. We'd like to keep him around for a little longer.
Ok...I know this post is a dud. Sorry.
Love to all,
Brittany
Like I said, he's doing better with the eating. He's still not consuming huge amounts but he's eating some without fighting and actually feeding himself some things. I learned today that he likes sugar cookies. Go figure. You can break a few small pieces off and he'll use his little pincher grasp (milestone...check) to eat them. No gagging at all. Makes me think he's been playing us this whole time.
Reed has been fun all weekend. Beau took him to a ballpark Saturday morning and he can't wait to go back. He just asked me as I kissed him goodnight if we could go to the ballgame tomorrow. Sweet boy.
Oh...one last quick thing. Reed and Beau went to church this morning. On the way, Reed said, "Daddy, you going to see Jesus soon". Say a little prayer for Beau. We'd like to keep him around for a little longer.
Ok...I know this post is a dud. Sorry.
Love to all,
Brittany
Wednesday, May 19, 2010
Come on Down!
You know how you have some nights that just go how they are supposed to? We've had one of those nights tonight and I've loved it. There was no major commotion and the boys actually played together while I cooked dinner. We had a nice family dinner with Gaines in the high chair and Reed in a big boy chair. Usually Gaines is in the exersaucer while we eat but in an effort to get him more used to eating, we put him in the high chair with a small serving of chopped up spaghetti for him to "eat". He played with it, got it everywhere and even opened his mouth when I'd scoop a bite on my finger (he preferred my finger to a utensil and beggars can't really be choosers so I obliged). Again, he didn't consume huge quantities but there was no screaming involved, no clamping of the jaw and no trying to wedge a spoon in his mouth. I think this is progress. Maybe its just been the baby food he hasn't liked because this was a lot thicker with a lot more texture. I think we had one gag but everything stayed down. Here is Gaines after dinner tonight. He went straight from this chair to the tub. You can see why.
He really is a pretty happy boy...when he's getting his way. He screams like a girl when he's not. Seriously, this high pitched squeal. I wish you all could see him at home. He's a little thing but he gets wherever he wants and is always following someone around. He followed Reed and me somewhere this afternoon and I asked Reed what we were going to do with Gaines. I said, "Do you want us to keep him or do you want us to move him out?" Reed said, "Move out". Actually, he has been sweeter to his little brother lately. Reed hugs and kisses him before bed. You should see the giant smile on Gaines' face. He loves his big brother.
Also, we'll never have to discipline Gaines because Reed handles that for us. "No Gaines...don't touch that". "No Gaines, that mine."
On a seperate note, the video below is Reed in the bath last night. They have a "Watermelon Idol" (watermelon is his class right now) in his class where they each get to sing their favorite song into a microphone. Apparently, they get called to "Come on down" when its their turn.
He really is a pretty happy boy...when he's getting his way. He screams like a girl when he's not. Seriously, this high pitched squeal. I wish you all could see him at home. He's a little thing but he gets wherever he wants and is always following someone around. He followed Reed and me somewhere this afternoon and I asked Reed what we were going to do with Gaines. I said, "Do you want us to keep him or do you want us to move him out?" Reed said, "Move out". Actually, he has been sweeter to his little brother lately. Reed hugs and kisses him before bed. You should see the giant smile on Gaines' face. He loves his big brother.
Also, we'll never have to discipline Gaines because Reed handles that for us. "No Gaines...don't touch that". "No Gaines, that mine."
On a seperate note, the video below is Reed in the bath last night. They have a "Watermelon Idol" (watermelon is his class right now) in his class where they each get to sing their favorite song into a microphone. Apparently, they get called to "Come on down" when its their turn.
I guess that's about it. Just a note on the questions about Gaines' breathing treatments. Right now he's taking albuterol treatments via nebulizer because our doctor thinks they are more effective. We'll stop those soon and are only doing them again because of the pneumonia. He takes flovent via the "puffer" with a chamber everyday.
I think its going to be an early night for me tonight.
Love to all,
Brittany
Monday, May 17, 2010
Sunday, May 16, 2010
Home!
Just a quick post to let you all know that Gaines is home and doing well. He had a great night Friday night and they released him Saturday. We've had a quiet afternoon and morning with Reed in Andalusia but he's coming home today so life is about to be less quiet. Thank you for all of your prayers. I'll try to post more soon.
Brittany
Brittany
Friday, May 14, 2010
Gaines Update
Thanks so much for all of the prayers today. They've really paid off. Gaines is doing great. He's going to spend another night in the hospital tonight but I'm cautiously optimistic that he'll get to go home tomorrow. The little joker doesn't even act like he feels bad...
We took him to the doctor yesterday because his sats had been a little low, not because he seemed overly sick. Its crazy, I've taken him to the doctor before and been sure they were going to put him in the hospital. I would have never guessed that he had pneumonia. I think because we can watch his sat levels, we caught it early. A person not on a monitor would have probably waited until they started feeling bad before they went to the doctor but we were able to see on the monitor that Gaines' body wasn't doing what it should have been, before he started feeling really bad.
He's been on IV antibiotics and steroids along with lots of albuterol so he's been bouncing off the walls today. Totally pleasant and sweet...just wired. The good news is that he's asleep right now, back down to a half liter (he'd been up to one) with great sats. Please pray that it keeps up and he's able to come home tomorrow. I'll keep you posted.
Love to all,
Brittany
We took him to the doctor yesterday because his sats had been a little low, not because he seemed overly sick. Its crazy, I've taken him to the doctor before and been sure they were going to put him in the hospital. I would have never guessed that he had pneumonia. I think because we can watch his sat levels, we caught it early. A person not on a monitor would have probably waited until they started feeling bad before they went to the doctor but we were able to see on the monitor that Gaines' body wasn't doing what it should have been, before he started feeling really bad.
He's been on IV antibiotics and steroids along with lots of albuterol so he's been bouncing off the walls today. Totally pleasant and sweet...just wired. The good news is that he's asleep right now, back down to a half liter (he'd been up to one) with great sats. Please pray that it keeps up and he's able to come home tomorrow. I'll keep you posted.
Love to all,
Brittany
Thursday, May 13, 2010
The Unexpected Lows
The past couple of days Gaines has been SATing a little low (lower 90's) and his heart rate has been a little high. Brittany and I weren't exactly sure what was wrong but we weren't extremely concerned because everything would level out while he was in a deep sleep and he was still acting like himself. This changed this morning. He seemed very lethargic after waking up. He went down for his morning nap about an hour ahead of schedule. We called the doctor.
After a trip to the doctor, blood work, x-rays, and a conference call with his pediatric pulminologist, Gaines has been diagnosed with pneumonia. He was admitted to the hospital this afternoon. He has an IV giving him steroids, antibiotics and fluids. They have increased his oxygen to a liter (he has been at a half liter). So far he is holding his own. If everything goes well, he will be home by the end of the weekend. If he starts going in the wrong direction, the doctors have already told us we will be headed to Children's Hospital in Birmingham.
Please say a prayer for Gaines...a speedy recovery would be a blessing.
After a trip to the doctor, blood work, x-rays, and a conference call with his pediatric pulminologist, Gaines has been diagnosed with pneumonia. He was admitted to the hospital this afternoon. He has an IV giving him steroids, antibiotics and fluids. They have increased his oxygen to a liter (he has been at a half liter). So far he is holding his own. If everything goes well, he will be home by the end of the weekend. If he starts going in the wrong direction, the doctors have already told us we will be headed to Children's Hospital in Birmingham.
Please say a prayer for Gaines...a speedy recovery would be a blessing.
Wednesday, May 12, 2010
Three Things...
I've got three main things to report tonight.
1. We've had a mini-victory tonight with Gaines. I put some of the Chicken Parmesan I made in the food processor and fed it to him. He gagged on the first bite so I stuck my finger in it and let him taste it. After that, he grabbed the spoon and pulled it to his mouth. He didn't consume a lot of it, but he was interested in having it in his mouth and was kind of getting familiar with the texture. I know it sounds small but it is huge for Gaines. Another highlight, he took two of his bottles today via sippy cup. Two tiny steps in the right direction.
This is still part of number one but I thought I needed a new paragraph. Someone mentioned in a comment today that Prevacid caused their child's appetite to decrease. Gaines is on Prevacid too so I researched it a little and called his doctor. He called in a new prescription to switch him back to Zantac and see if it helps his appetite. I think given today's tiny success, I might wait and see if we are on to something with "real" food but we are ready to try the medicine change if this doesn't get the ball rolling. Thanks for the tip!
2. I think Reed has an older child syndrome. He was spraying my flowers outside today with his spray bottle (best 96 cents I've spent in a while) and he said, "Am I doing it perfect, Mom?". Poor little thing already has a need to be perfect. Other older children will understand this. You rogue second and third children will not.
3. So, remember forever ago when we shot that footage for the 700 club? Well they discontinued that portion of their show but they are still airing them on their website. Here is the link if you are interested.
http://www.cbn.com/media/player/index.aspx?s=/vod/COW157v1_WS&search=700club&p=1&parent=1&subnav=false
Love to all,
Brittany
1. We've had a mini-victory tonight with Gaines. I put some of the Chicken Parmesan I made in the food processor and fed it to him. He gagged on the first bite so I stuck my finger in it and let him taste it. After that, he grabbed the spoon and pulled it to his mouth. He didn't consume a lot of it, but he was interested in having it in his mouth and was kind of getting familiar with the texture. I know it sounds small but it is huge for Gaines. Another highlight, he took two of his bottles today via sippy cup. Two tiny steps in the right direction.
This is still part of number one but I thought I needed a new paragraph. Someone mentioned in a comment today that Prevacid caused their child's appetite to decrease. Gaines is on Prevacid too so I researched it a little and called his doctor. He called in a new prescription to switch him back to Zantac and see if it helps his appetite. I think given today's tiny success, I might wait and see if we are on to something with "real" food but we are ready to try the medicine change if this doesn't get the ball rolling. Thanks for the tip!
2. I think Reed has an older child syndrome. He was spraying my flowers outside today with his spray bottle (best 96 cents I've spent in a while) and he said, "Am I doing it perfect, Mom?". Poor little thing already has a need to be perfect. Other older children will understand this. You rogue second and third children will not.
3. So, remember forever ago when we shot that footage for the 700 club? Well they discontinued that portion of their show but they are still airing them on their website. Here is the link if you are interested.
http://www.cbn.com/media/player/index.aspx?s=/vod/COW157v1_WS&search=700club&p=1&parent=1&subnav=false
Love to all,
Brittany
Tuesday, May 11, 2010
"Gaineser"
I swear I had a couple of things that I wanted to post on here over the last couple of days but I cannot for the life of me remember what they were. I guess I’ll start with a Gaines update.
That child just has no desire to eat. He only acts hungry when he’s taking steroids for a cold. He does ok with his bottles once you get them in his mouth but he cries and fights you until you get it in there. We’ve also been back to pushing baby foods and I have to fight to get a half baby food down him. And by fight I mean either force his mouth open with a spoon or wait for him to cry and shove a bite in. I feel like that’s not the right way to be doing things but I don’t know what else to do. Now he’s taken to just leaving his mouth wide open with a bite of food in it. He’s kind of like, “Fine, you got it in but I’m not swallowing it”. It’s just a mess…I don’t know what to do. I know he needs to experience new textures to get over his aversion to them but it is just such a fight with him. I think we are both physically exhausted after each meal.
Other than the feeding, he’s a sweet and happy boy. He’s learning to clap and say and wave “bye bye”…I wouldn’t call them mastered tasks but he’s working on them. He was super happy to see Ms. Kristen yesterday after she’d been away for a week. I didn’t see it but Beau said he just loved on her and had a huge smile on his face when she picked him up.
Oh…Reed has taken to calling Gaines “Gaineser”. I’ve called him that here and there but now that’s pretty much how Reed refers to him regularly. He’ll say, “Mama, Gainser is touching me” or “NO! Gainser…NO!” because he’s touching his scooter or something. Also, all of a sudden, Beau and I are no longer, Mama and Daddy…we are now Mom and Dad. Beau was Dad first which I thought was kind of funny until I became Mom and then I wasn’t as impressed. I laughed so hard Saturday morning at him. Beau was eating breakfast and Reed crawled in his lap and said, “Dad, you wanna share your cereal with me?” Obviously Beau didn’t really want to “share” his cereal but due to the “share” word being brought out, he pretty much had to. I hurried up and ate mine because I really do not like to share my food. Happy to fix/order you your own, but don’t expect any of mine. And if I do decide to share my food with you, you better believe you are getting the lesser fries, chips, brownie piece etc. Not the premium ones. Is that selfish? Probably. We won’t dwell on that.
Look at this picture of my boys. People always ask who Gaines looks like. I think you can tell from this picture.
Also, you know how I said the other day that I had no problem getting Reed to go to sleep? Check out these pictures from last night. We found him asleep in his floor. Two nights before, we barely found him asleep under the dining room table. I’d been in and out of the dining room for two hours and finally saw two little feet sticking out. Reed was just as asleep as he could be.
That child just has no desire to eat. He only acts hungry when he’s taking steroids for a cold. He does ok with his bottles once you get them in his mouth but he cries and fights you until you get it in there. We’ve also been back to pushing baby foods and I have to fight to get a half baby food down him. And by fight I mean either force his mouth open with a spoon or wait for him to cry and shove a bite in. I feel like that’s not the right way to be doing things but I don’t know what else to do. Now he’s taken to just leaving his mouth wide open with a bite of food in it. He’s kind of like, “Fine, you got it in but I’m not swallowing it”. It’s just a mess…I don’t know what to do. I know he needs to experience new textures to get over his aversion to them but it is just such a fight with him. I think we are both physically exhausted after each meal.
Other than the feeding, he’s a sweet and happy boy. He’s learning to clap and say and wave “bye bye”…I wouldn’t call them mastered tasks but he’s working on them. He was super happy to see Ms. Kristen yesterday after she’d been away for a week. I didn’t see it but Beau said he just loved on her and had a huge smile on his face when she picked him up.
Oh…Reed has taken to calling Gaines “Gaineser”. I’ve called him that here and there but now that’s pretty much how Reed refers to him regularly. He’ll say, “Mama, Gainser is touching me” or “NO! Gainser…NO!” because he’s touching his scooter or something. Also, all of a sudden, Beau and I are no longer, Mama and Daddy…we are now Mom and Dad. Beau was Dad first which I thought was kind of funny until I became Mom and then I wasn’t as impressed. I laughed so hard Saturday morning at him. Beau was eating breakfast and Reed crawled in his lap and said, “Dad, you wanna share your cereal with me?” Obviously Beau didn’t really want to “share” his cereal but due to the “share” word being brought out, he pretty much had to. I hurried up and ate mine because I really do not like to share my food. Happy to fix/order you your own, but don’t expect any of mine. And if I do decide to share my food with you, you better believe you are getting the lesser fries, chips, brownie piece etc. Not the premium ones. Is that selfish? Probably. We won’t dwell on that.
Look at this picture of my boys. People always ask who Gaines looks like. I think you can tell from this picture.
Also, you know how I said the other day that I had no problem getting Reed to go to sleep? Check out these pictures from last night. We found him asleep in his floor. Two nights before, we barely found him asleep under the dining room table. I’d been in and out of the dining room for two hours and finally saw two little feet sticking out. Reed was just as asleep as he could be.
Ok…I think that’s it for now. I’m not exactly posting these things every day but I’m doing better than once a week!
Love to all,
Brittany
Love to all,
Brittany
Friday, May 7, 2010
Friday Night With My Boys
Wow...lots of comments and good ideas. I'll have to try some of those. Y'all don't feel too sorry for me, Reed completely redeemed himself with the mother's day card he made at school. He drives me crazy but he makes up for it in so many ways and keeps me laughing all the time.
About the sleep, I don't have a problem really getting either of them to bed...its just the mornings. Reed goes to bed at 7:30. We had him going to bed later the last time we had this problem and his pediatrician said he should be in bed between 7 and 7:30...considering his wake and nap times. I know you can't do everything by the book/doctor but our pediatrician has never lead us wrong so I'm trying to stick to it.
Speaking of pediatrician, Gaines had his one year check-up today. They're going to let us keep him. He did not gain as much weight as I'd hoped...17 lbs 3 oz which means he's in the less than 5th percentile on weight. The good news is that he's in the 55th percentile on height. After talking to our superdoc today (I just love him), I've decided that I'm going to sort of change philosophies on Gaines. We are so nutrtition focused that we aren't letting him progress on foods. Because bottles have more calories, we'd rather him have those, and those are so concentrated and thick, he has no desire for actual food...baby or soft table foods. It's time that he's venturing into all of that. Plus feeding himself would help develop his fine motor skills.
I won't bore you with everything but I am asking for prayers on this. Its kind of a leap for me. The nutritionist and pulmonologist he sees every two months have him on all these extra bottle calories so they might not be impressed with the new plan but the way I see it is, what can it hurt. It's not like he's breaking the scales doing it their way. I guess he can always go backwards but that's where your prayers come in. Please pray for weight gain and interest in actual foods.
In other news, I took the afternoon off for today's appointment so afterwards we went to visit our old nurse friends in the NICU. It was so great to see them and I think they were all excited to see Gaines. He jabbers non-stop these days but he just stared at them in awe. I wondered if he knew where he was. Probably not I guess but it was still a fun visit.
It's been just me and the boys this afternoon so I've been a little bit of a supermom. It's crazy when you have them both by yourself but I love the feeling when they are both in bed and the house is in order. I feel like I accomplished something. Granted, we had a frozen pizza for dinner and there were no baths (Friday baths are not mandatory here...I'm sorry if you think that's gross) but I do have my sheets in the dryer and a couple other weekend projects in the works. I'm hoping to do some planting in my flower pots tomorrow amongst a few other things. Its my first full weekend at home in weeks so I plan to get some projects done and do a little relaxing. Beau informed me earlier this week that I had a problem just letting things sit "undone" and relaxing (he does not seem to suffer from this same disorder) but I plan to prove him wrong this weekend.
Oh...something I was thinking about earlier in the week. This will make up for my snide Beau comment above. I travel some for my work and people always ask me who takes care of my boys when I'm gone. Uhhhh...their dad? I continue to be baffled that I get asked this question ALL the time. I've always known that I'm blessed with an awesome husband but from these questions, I've come to learn that he's even more above average than I'd originally thought. I am very, very lucky to have a husband who is an active father/partner in raising two little boys and who I have complete confidence in when I'm out of town. I couldn't have my current job without him.
Now, nobody tell him I said that.
Happy Mother's Day Weekend!
Brittany
About the sleep, I don't have a problem really getting either of them to bed...its just the mornings. Reed goes to bed at 7:30. We had him going to bed later the last time we had this problem and his pediatrician said he should be in bed between 7 and 7:30...considering his wake and nap times. I know you can't do everything by the book/doctor but our pediatrician has never lead us wrong so I'm trying to stick to it.
Speaking of pediatrician, Gaines had his one year check-up today. They're going to let us keep him. He did not gain as much weight as I'd hoped...17 lbs 3 oz which means he's in the less than 5th percentile on weight. The good news is that he's in the 55th percentile on height. After talking to our superdoc today (I just love him), I've decided that I'm going to sort of change philosophies on Gaines. We are so nutrtition focused that we aren't letting him progress on foods. Because bottles have more calories, we'd rather him have those, and those are so concentrated and thick, he has no desire for actual food...baby or soft table foods. It's time that he's venturing into all of that. Plus feeding himself would help develop his fine motor skills.
I won't bore you with everything but I am asking for prayers on this. Its kind of a leap for me. The nutritionist and pulmonologist he sees every two months have him on all these extra bottle calories so they might not be impressed with the new plan but the way I see it is, what can it hurt. It's not like he's breaking the scales doing it their way. I guess he can always go backwards but that's where your prayers come in. Please pray for weight gain and interest in actual foods.
In other news, I took the afternoon off for today's appointment so afterwards we went to visit our old nurse friends in the NICU. It was so great to see them and I think they were all excited to see Gaines. He jabbers non-stop these days but he just stared at them in awe. I wondered if he knew where he was. Probably not I guess but it was still a fun visit.
It's been just me and the boys this afternoon so I've been a little bit of a supermom. It's crazy when you have them both by yourself but I love the feeling when they are both in bed and the house is in order. I feel like I accomplished something. Granted, we had a frozen pizza for dinner and there were no baths (Friday baths are not mandatory here...I'm sorry if you think that's gross) but I do have my sheets in the dryer and a couple other weekend projects in the works. I'm hoping to do some planting in my flower pots tomorrow amongst a few other things. Its my first full weekend at home in weeks so I plan to get some projects done and do a little relaxing. Beau informed me earlier this week that I had a problem just letting things sit "undone" and relaxing (he does not seem to suffer from this same disorder) but I plan to prove him wrong this weekend.
Oh...something I was thinking about earlier in the week. This will make up for my snide Beau comment above. I travel some for my work and people always ask me who takes care of my boys when I'm gone. Uhhhh...their dad? I continue to be baffled that I get asked this question ALL the time. I've always known that I'm blessed with an awesome husband but from these questions, I've come to learn that he's even more above average than I'd originally thought. I am very, very lucky to have a husband who is an active father/partner in raising two little boys and who I have complete confidence in when I'm out of town. I couldn't have my current job without him.
Now, nobody tell him I said that.
Happy Mother's Day Weekend!
Brittany
Thursday, May 6, 2010
Roosters
I just thought I’d give y’all a little peak into my morning today. This is the account (best I can remember) from 4:17 a.m. to 5:43 a.m. The sad part is, this sort of thing happens on a regular basis. If any of you know how to get my children to sleep later, please let me know. I’m in search of a wake/sleep clock for Reed. I was looking for a reasonably priced one but after this morning. I’m willing to pay a small fortune for one if it works.
4:17-Reed is at my door reading a book that makes noise.
4:18-Reed is back in bed with a threat on his life if he gets out of his bed again. He tells me he wants breakfast. I tell him it is still dark outside and not time for breakfast. I do not win points for this.
4:19-Back in my bed.
4:22-Gaines is awake and crying. Trying to be tough and let him cry it out but he’s right next to us and the pillow over my head is not cutting it.
4:32-I give up and move to the couch (Beau’s night with Gaines…my turn with Reed) but can still hear Gaines…through my pillow that is on my head again.
5:00 or so…crying stops
5:13-Reed needs to go potty.
5:14-Reed tells me he wants a banana next week. I say fine and don’t ask any questions.
5:15-I almost gave in and let him watch cartoons until 5:45. He wanted Berenstain Bears or Veggie Tales DVD. I offered Disney channel as I was not about to find and start a DVD.
5:16-Disney does not cut it and Reed freaks and cries on the floor. There are convulsions involved. I tell him fine…he can watch nothing and turn off the TV with as much authority as you can turn off a TV with one finger. I am the meanest mom.
5:17-Reed cries for a while…”I want my daddy…I want my daddy”.
5:18-I’m back on the couch pillow over my head again plotting his punishment if he wakes up Gaines.
5:26ish-The cries turn from “I want daddy” to, “I found money”…still crying. I don’t know why that was sad.
5:32- I realize that he is standing at our bedroom door in serious jeopardy of waking up Gaines…again.
5:33-I get off the couch and go get him and let him put the dime he found in his piggy bank.
5:34- Turn on the light and offer to let him read in bed. He wants to read his Bible. That’s awesome, but I can’t find it. He tells me he put it behind his headboard so I get on the floor and scrounge around under the bed until I find it.
5:35-I leave him in his bed “reading” and threaten his life again if he leaves his room in the next 10 minutes.
5:36-I am still holding strong on my new “Do not leave your room before 5:45 a.m.” mantra. I feel a little self satisfaction despite being bitterly tired.
5:43-I hear Reed in the dining room and give up. 5:43 is pretty close to 5:45.
Say a prayer for my sanity.
Brittany
4:17-Reed is at my door reading a book that makes noise.
4:18-Reed is back in bed with a threat on his life if he gets out of his bed again. He tells me he wants breakfast. I tell him it is still dark outside and not time for breakfast. I do not win points for this.
4:19-Back in my bed.
4:22-Gaines is awake and crying. Trying to be tough and let him cry it out but he’s right next to us and the pillow over my head is not cutting it.
4:32-I give up and move to the couch (Beau’s night with Gaines…my turn with Reed) but can still hear Gaines…through my pillow that is on my head again.
5:00 or so…crying stops
5:13-Reed needs to go potty.
5:14-Reed tells me he wants a banana next week. I say fine and don’t ask any questions.
5:15-I almost gave in and let him watch cartoons until 5:45. He wanted Berenstain Bears or Veggie Tales DVD. I offered Disney channel as I was not about to find and start a DVD.
5:16-Disney does not cut it and Reed freaks and cries on the floor. There are convulsions involved. I tell him fine…he can watch nothing and turn off the TV with as much authority as you can turn off a TV with one finger. I am the meanest mom.
5:17-Reed cries for a while…”I want my daddy…I want my daddy”.
5:18-I’m back on the couch pillow over my head again plotting his punishment if he wakes up Gaines.
5:26ish-The cries turn from “I want daddy” to, “I found money”…still crying. I don’t know why that was sad.
5:32- I realize that he is standing at our bedroom door in serious jeopardy of waking up Gaines…again.
5:33-I get off the couch and go get him and let him put the dime he found in his piggy bank.
5:34- Turn on the light and offer to let him read in bed. He wants to read his Bible. That’s awesome, but I can’t find it. He tells me he put it behind his headboard so I get on the floor and scrounge around under the bed until I find it.
5:35-I leave him in his bed “reading” and threaten his life again if he leaves his room in the next 10 minutes.
5:36-I am still holding strong on my new “Do not leave your room before 5:45 a.m.” mantra. I feel a little self satisfaction despite being bitterly tired.
5:43-I hear Reed in the dining room and give up. 5:43 is pretty close to 5:45.
Say a prayer for my sanity.
Brittany
Wednesday, May 5, 2010
Made My Week
I've been out of town so I'm a little behind and will have a more extensive report soon but I had to share this quick conversation at dinner tonight.
I said, "Reed, who is your girlfriend? Do you have a girlfriend at school?"
He just pointed at me and said, "You!"
Made my week.
More soon.
Brittany
I said, "Reed, who is your girlfriend? Do you have a girlfriend at school?"
He just pointed at me and said, "You!"
Made my week.
More soon.
Brittany
Saturday, May 1, 2010
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