tag:blogger.com,1999:blog-5469762995730196850.post5536778297980295177..comments2023-06-10T09:59:24.782-04:00Comments on The Daniel Family: A Good but Frustrating DayThe Daniel Familyhttp://www.blogger.com/profile/07666949555660444180noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-5469762995730196850.post-66704582365893470162009-08-19T16:52:06.891-04:002009-08-19T16:52:06.891-04:00Praying for continued healing in his little lungs ...Praying for continued healing in his little lungs and that he can gain more strength and stamina for feeding.<br /><br />Am happy to talk anesthesia with you if the need arises, :) but am hoping and praying that surgery's not in God's plans for the little guy.Sarahhttps://www.blogger.com/profile/05627548564345675241noreply@blogger.comtag:blogger.com,1999:blog-5469762995730196850.post-72571492733990063542009-08-19T11:15:43.738-04:002009-08-19T11:15:43.738-04:00Our NICU neo's changed every two weeks and I t...Our NICU neo's changed every two weeks and I thought that was frustrating. And in 3 months, we only had 4 neo's as they all rotated. Sounds like you guys are just getting a parade of them every week. That sounds very hard to deal with. Good to have lots of opinions and theories, but it sounds like the goal or "finish line", or even what is considered acceptable, is always changing. I bet that's really hard. Sounds truly maddening.<br /><br />Our daughter was fed through an NG tube up until the day before she went home. The Neo was just getting ready to teach us how to use the NG tube at home when she decided to take all her feeds by bottle. I can understand your desire to avoid potentially another surgery, another intubation and a permanent solution. <br /><br />You guys have been through so much already. Hopefully Gaines will be home staring a pumpkins, dressed up as something cute, watching his adorable older brother get ready for Halloween festivities. Praying!!!!Amandahttps://www.blogger.com/profile/02732014961087715914noreply@blogger.comtag:blogger.com,1999:blog-5469762995730196850.post-30334260375502950602009-08-19T09:17:48.645-04:002009-08-19T09:17:48.645-04:00Praying for NO G Tube!! Hang in there Beau and Br...Praying for NO G Tube!! Hang in there Beau and Brit - praying for you guys to have the peace that passes all understanding.The Ellis Familyhttps://www.blogger.com/profile/14018023336357312052noreply@blogger.comtag:blogger.com,1999:blog-5469762995730196850.post-83981177965205453422009-08-19T07:45:57.615-04:002009-08-19T07:45:57.615-04:00Hi there, I stumbled upon your blog the other day ...Hi there, I stumbled upon your blog the other day and wanted you to know there is one more person praying for Gaines.<br /><br />I have 2 daughters that were former preemies and I identify with much of what you are saying. My girls were not in the hospital as long as Gaines but we had similar frustrations with oxygen and feeding! <br /><br />Why won't these little guys just do what their Mommy says! I agree with the pp to voice your opinions to the drs. With my 2nd daughter I did and I am glad that I did. It must be so frustrating to get a new dr every week. That just sounds crazy! We were able to have a dr/month. <br /><br />Hang in there. Gaines will come home eventually!<br /><br />Praying for you and your sweet family!Karihttps://www.blogger.com/profile/03364047679677522722noreply@blogger.comtag:blogger.com,1999:blog-5469762995730196850.post-36868307123797122812009-08-18T23:54:45.708-04:002009-08-18T23:54:45.708-04:00I believe, as a nurse, that you should communicate...I believe, as a nurse, that you should communicate your frustration with the Drs. They need to know where you are coming from and although each of their "requirements" are reasonable, they really need to take into consideration your concerns and address them. Even if they continue with their plan, it will make you feel better that they have heard your concerns and are considering them as they treat your precious son. Remember...THEY are human too. Probably Daddy's or Mommies themselves. They know the pressures you are under, they just go about their job and often don't communicate as they should. <br />I think Gaines is doing GREAT from your reports! October isn't unreasonable! Praying in Chicago!cherylhttps://www.blogger.com/profile/14393223336289803845noreply@blogger.comtag:blogger.com,1999:blog-5469762995730196850.post-35713915137784343522009-08-18T23:07:29.381-04:002009-08-18T23:07:29.381-04:00Praying for Gaines' lungs and eating habits! ...Praying for Gaines' lungs and eating habits! Our Eli took a long time to get up to "full feeds," but he eventually did, and avoided a tube. I'm praying that Gaines does the same and that you will have peace and patience as you endure the sometimes agonizing wait!Ericahttps://www.blogger.com/profile/09800646159604569717noreply@blogger.comtag:blogger.com,1999:blog-5469762995730196850.post-24002822781695642742009-08-18T21:52:35.512-04:002009-08-18T21:52:35.512-04:00Praying for you. I hate getting the run around wi...Praying for you. I hate getting the run around with doctors! It is so frustrating when it is you or your child's life that they are dealing with. I will pray for much better feedings so you guys don't have to think about a permanent feeding tube.Dianahttps://www.blogger.com/profile/17000530764658634227noreply@blogger.com