tag:blogger.com,1999:blog-5469762995730196850.post4033446690909571264..comments2023-06-10T09:59:24.782-04:00Comments on The Daniel Family: A Really Long One...The Daniel Familyhttp://www.blogger.com/profile/07666949555660444180noreply@blogger.comBlogger13125tag:blogger.com,1999:blog-5469762995730196850.post-43317920408265438022009-09-08T14:58:02.799-04:002009-09-08T14:58:02.799-04:00I'm still praying hard here in Virginia (even ...I'm still praying hard here in Virginia (even though ya'll beat my Hokies..haha). I'm so anxious and praying that Gaines is able to go home very soon! <br /><br />And about that possible CP...we just got that "possible CP" talk about Ryan because Ryan has stiffness in his leg (and has since he was in the NICU). He got PT from 6mo until he started walking at 13 months and has been fine since. He started toe walking recently, which most all kids do at some point before age 3. For various other reasons which are too long to get into here, he is getting some test done but I have my doubts about CP. CP can be so very mild, so does that mean every child who has stiffness or toe walks has it? I don't know but it should be the furthest thing from your mind right now..JMO. Take it one day at a time! <br />Hugs,<br />Karen in VirginiaKarenhttps://www.blogger.com/profile/15010040325079908843noreply@blogger.comtag:blogger.com,1999:blog-5469762995730196850.post-28791406585073317892009-09-08T11:47:18.764-04:002009-09-08T11:47:18.764-04:00Praying for Gaines and your entire family! I am s...Praying for Gaines and your entire family! I am so happy to hear of the amazing progree Gaines has had recently, I know you guys needed some encouragement. I can't imagine the fear associated with bringing him home though! :) Not that you have time right now, or any time for that matter with 2 children, but I would like to recommend a book that I am reading . It's called The Shack. You may have heard of it. It's difficult to read at points, being a mother, but I feel that it really explains a lot of the way God is and how he handles situations. I think I may go back and reread it because as I'm going through it, some seems to go over my head! LOL I think I just need to have quiet time to myself to read the book slowly and pray over it. Just a suggestion, but in your post you made some comments that really made me think of this book. I hope you guys have a great week!Triple J's Girlhttps://www.blogger.com/profile/18231995018203842749noreply@blogger.comtag:blogger.com,1999:blog-5469762995730196850.post-74294774382862486282009-09-08T07:00:06.728-04:002009-09-08T07:00:06.728-04:00Beau and Brit,
We'll get you hooked up with ...Beau and Brit, <br /><br />We'll get you hooked up with the wonderful folks at Alabama's Early Intervention program for physical therapy (and occupational and eventually speech if he needs them). Kat had poor muscle tone too and concerns of mild CP, but through physical therapy that little monster is ALL over the place!! We'll pray that he overcomes this obstacle too. <br /><br />And you let us know if we can put in a good word for you with the pulmonologist - we are a little familiar with them!! I'll see Dr. Lozano tomorrow.<br /><br />Hugs and kisses!! <br /><br />Proud Aunt Kelly, Uncle Greg, and cousins Maddie and KatThe Ellis Familyhttps://www.blogger.com/profile/14018023336357312052noreply@blogger.comtag:blogger.com,1999:blog-5469762995730196850.post-17656909764399707722009-09-07T15:04:23.276-04:002009-09-07T15:04:23.276-04:00I just wanted to say that it is wonderful that you...I just wanted to say that it is wonderful that your sweetie is doing so well! I also wanted to reassure you that in the smallest of chances that he has CP, it is not necessarily a 'bad' thing. That is probably hard for you to believe, but it's true!<br /> My youngest child has severe disabilities and she is truly a gift to our family. Her disabilities are a gift. It is a positive, beautiful, wonderful thing. She is our teacher. My older children and I are much more empathetic, sensitive, multilayered people because of her and her 'CP'. Sure, we have been challenged, but not her! She is delightful, happy and endearing. She is learning and growing. She is the BEST thing that could have ever happened to our family. We are so blessed. I often wonder how I got so lucky to have been given this special child. <br /><br />You might be in for a wonderful surprise :)lesleyhttps://www.blogger.com/profile/09501503992952033631noreply@blogger.comtag:blogger.com,1999:blog-5469762995730196850.post-8565449743748779862009-09-07T13:27:29.818-04:002009-09-07T13:27:29.818-04:00Here's praying that Gaines does get to come ho...Here's praying that Gaines does get to come home this week. I would be strict about who all comes to see him; everybody will understand why you don't want your sweet little guy exposed to germs. Especially as long as you keep them updated with pictures, say, like on this blog. :-) Then when the weather gets warm you can have lots of people over for a "Gaines is at home and it's not flu season" party.kim_broughhttps://www.blogger.com/profile/15266273034368298545noreply@blogger.comtag:blogger.com,1999:blog-5469762995730196850.post-81350679612728944042009-09-07T11:34:30.165-04:002009-09-07T11:34:30.165-04:00We'll be praying for your family as you transi...We'll be praying for your family as you transition to hopefully getting Gaines home. I know it will be good to care for him yourself, but don't put too much pressure on yourself because it will be a lot to learn at first. It took several months with my preemie at home before I felt like it was comfortable and routine. You will get used to it just like you have all the other challenges so far. Just take it one day at a time.<br /><br />Hopefully, Gaines can have Synagis injections to protect him against RSV this flu season, as most preemies get those monthly for five months or so. My preemie didn't get sick at all the first winter! It will be some adjustment to have to take turns going to the store or church, so that Gaines basically never leaves the house. However, that is still much better for bonding than being in the hospital.<br /><br />I'm praying that CP isn't an issue, and that his muscle tone develops. Your perspective is good not to worry about the unknown at this point. God has it all in His hand.Michelle Cearleyhttps://www.blogger.com/profile/14858593629383520900noreply@blogger.comtag:blogger.com,1999:blog-5469762995730196850.post-51050926417967725832009-09-07T09:34:40.629-04:002009-09-07T09:34:40.629-04:00Praying that all your prayers are answered and tha...Praying that all your prayers are answered and that Gaines is sleeping in his own house this weekend!Dianahttps://www.blogger.com/profile/17000530764658634227noreply@blogger.comtag:blogger.com,1999:blog-5469762995730196850.post-23973021008445439342009-09-07T03:15:35.892-04:002009-09-07T03:15:35.892-04:00Thinking of you and praying that your boy is home ...Thinking of you and praying that your boy is home soon!Lindahttps://www.blogger.com/profile/03118370477429954699noreply@blogger.comtag:blogger.com,1999:blog-5469762995730196850.post-44198417810941965912009-09-07T02:29:49.405-04:002009-09-07T02:29:49.405-04:00Keep us posted and we're rooting for that litt...Keep us posted and we're rooting for that little boy! So wonderful to hear that he's almost ready to go home!!! :)<br /><br />ROLL TIDE!!!!!!<br /><br />Kelli in Grand BayKellihttps://www.blogger.com/profile/13375994098478625933noreply@blogger.comtag:blogger.com,1999:blog-5469762995730196850.post-32321608837204569792009-09-07T01:31:55.974-04:002009-09-07T01:31:55.974-04:00I got chills thinking about Gaines comming home Fr...I got chills thinking about Gaines comming home Friday! Oh this NICU journey may be over soon! I will pray for you all to stay healthy and for Gaines to have a wonderful week and that you will be a happy family in your home by this time next week!<br />SarahSarahMerritthttps://www.blogger.com/profile/12173332089588769159noreply@blogger.comtag:blogger.com,1999:blog-5469762995730196850.post-13012349574932619742009-09-07T00:35:18.034-04:002009-09-07T00:35:18.034-04:00I'm so glad to hear your weekend at the hospit...I'm so glad to hear your weekend at the hospital went well! I pray that Beau will not come down with the flu and that you'll all stay healthy for Gaines' sake. What AWESOME news that you may all be together under one roof this week! I can't wait!Anonymoushttps://www.blogger.com/profile/01444046667591341655noreply@blogger.comtag:blogger.com,1999:blog-5469762995730196850.post-63304826199155859272009-09-06T23:36:54.404-04:002009-09-06T23:36:54.404-04:00He's getting so close to coming home! I am so...He's getting so close to coming home! I am so happy for you guys! I can't find your email on your blog, but if you have a minute, could you send me your email address? Gaines sounds so much like our Caleb (who's now 3)and I'd like to email you privately if you're open to it. (We also got the "CP talk" due to his stiff legs before we left the NICU....)<br />Take care,<br />Trisha<br />trishateisl@hotmail.comTrishahttps://www.blogger.com/profile/05220710529102183303noreply@blogger.comtag:blogger.com,1999:blog-5469762995730196850.post-6393494382357292322009-09-06T23:05:16.149-04:002009-09-06T23:05:16.149-04:00Praying for good things on Friday!Praying for good things on Friday!Giggleshttps://www.blogger.com/profile/05903531837402873897noreply@blogger.com